SCI Resources

Nonprofits and Resources for SCI/D

Navigating life with a spinal cord injury can be overwhelming, especially when you’re searching for reliable support. That’s what motivated me to create this curated list of nonprofits, disability resources, and mental health services. Some of these resources I’ve used personally, while others come highly recommended by friends in the disability community. A few are included based on broader feedback, even if I haven’t tried them myself.

General Grants, Quality of Life Grants, Financial Aid

  1. Easter Seals https://www.easterseals.com
  2. United Spinal Association  https://unitedspinal.org
  3. SCIboston (exclusive to New England)  https://www.sciboston.org/grants-1
  4. Triumph Foundation  https://triumph-foundation.org 
  5. Craig H Neilsen Foundation https://chnfoundation.org
  6. Rise Again  https://www.riseagainsci.org
  7. MW Foundation https://www.mwfund.org/grant-application
  8. Be Perfect Paralysis Awareness Foundation https://beperfectfoundation.org
  9. Bryon Riesch Paralysis Foundation https://brpf.org
  10. Friends of Man https://friendsofman.org
  11. Ian Burkhart Foundation https://www.ianburkhartfoundation.org
  12. Jack Trottier Foundation (exclusive to New England) https://www.jacktrottierfoundation.org
  13. Thomas E. Smith Foundation https://thomasesmithfoundation.org
  14. Victoria’s Victory Foundation https://victoriasvictory.org
  15. Matt Brown Foundation https://www.mattbrownfoundation.org
  16. Project34 https://projectthirtyfour.com
  17. The Perseverance Project https://theperseveranceproject.squarespace.com
  18. The Sterling Thomas Push Push Pray Foundation https://www.pushpushpray.org
  19. Walking with Anthony https://walkingwithanthony.org

Adaptive Equipment / Prosthetics

  1. American Mobility Project https://www.americanmobilityproject.org
  2. Quad Tools https://quadtools.com
  3. Low Tech Solutions https://store.lowtechsolutions.org
  4. Makers Making Change https://makersmakingchange.com
  5. All-Terrain Mobility https://allterrain.equaladventure.org
  6. Abilitease Adaptive https://abiliteaseadaptive.com
  7. Be Adaptive Equipment https://beadaptive.com
  8. Quad Tools https://quadtools.com
  9. Omnicuff https://reachable-tech.com

Exercise Equipment, Athletics, Adventure

  1. Kelly Brush Foundation https://kellybrushfoundation.org
  2. High Fives Foundation https://highfivesfoundation.org
  3. Life Rolls On Foundation https://liferollson.org
  4. Challenged Athletes Foundation https://www.challengedathletes.org
  5. Kevin Bennington Foundation (equestrian) https://kevinbabingtonfoundation.org
  6. New England Disabled Sports https://nedisabledsports.org
  7. Ian’s Ride https://www.iansride.com
  8. GoHawkeye Enabling Grant Program https://gohawkeye.org/grants/
  9. IM ABLE Foundation https://imablefoundation.org
  10. I GOT LEGS https://www.igotlegs.org
  11. Spinal Cord Opportunities for Rehabilitation Endowment (SCORE) https://scorefund.org

Durable Medical Equipment

  1. RAD Recreation Adapted Society https://www.radsociety.ca
  2. Northeast Passage https://www.nepassage.org
  3. REquipment https://dmereuse.org
  4. SCIboston For Sale / Donation Page https://www.sciboston.org/classifieds
  5. Hospital Equipment Loan Program (HELP) https://smd-help.org

Resource List

  1. Christopher & Dana Reeve Foundation https://www.christopherreeve.org
  2. Empower SCI https://www.empowersci.org/
  3. Wheels of Happiness https://wheelsofhappiness.org
  4. Amputee Coalition of America https://www.amputee-coalition.org
  5. Brain Injury Association of America https://www.biausa.org
  6. Brain Injury Resource Center http://www.headinjury.com
  7. The Brain Injury Network http://www.braininjurynetwork.org
  8. Traumatic Brain Injury Survival Guide http://www.tbiguide.com
  9. Disability Information https://www.dol.gov/agencies/odep/topics
  10. National Family Caregiver Association https://www.caregiveraction.org
  11. National Resource Center On Supportive Housing & Home Modification https://homemods.org/national-directory/
  12. Give An Hour (Provides donated mental health resources & counseling) https://giveanhour.org

Mental Health

Filter with: trauma, PTSD, grief, depression, anxiety, EMDR, chronic illness

  1. Psychology Today https://www.psychologytoday.com/us
  2. Zencare https://zencare.co
  3. Rula https://www.rula.com
  4. TherapyDen https://www.therapyden.com

Support Groups & Peer Mentoring

  1. SCIboston (I host the Tuesday and Thursday groups) https://www.sciboston.org/groups
  2. SCIboston (trauma-informed mentorship) https://www.sciboston.org/meet-our-mentors
  3. Backbones https://www.backbonesonline.org
  4. Christopher & Dana Reeve Foundation https://www.christopherreeve.org/todays-care/get-support/
  5. Talk Voice Control with Ian’s Ride a space to learn about Apple Voice Control) https://www.iansride.com/talk-voice-control

Transportation & Vehicles

  1. Mobility Works https://www.mobilityworks.com
  2. ATC Conversations https://www.atconversions.com
  3. National Aging & Disability Transportation Center https://www.nadtc.org
  4. Bridge to Mobility https://bridgetomobility.org
  5. Joe Jackson Foundation http://www.joejacksonfoundation.org/programs/driving-is-freedom-grant-applicaton/
  6. DriveAbility https://www.driveabilitynh.com

Assistive Technology & Gaming 

  1. Glassouse (wearable Bluetooth mouses and switches) https://glassouse.com
  2. Warfighter Engaged (custom switches & prosthetics) https://warfighterengaged.org
  3. Xbox Adaptive Controller https://www.xbox.com/en-US/accessories/controllers/xbox-adaptive-controller
  4. PlayStation Access Controller https://www.playstation.com/en-us/accessories/access-controller/
  5. QuadStick (mouth controller) https://www.quadstick.com
  6. Tyler Schrenk Foundation https://www.thetsf.org

Education Scholarships

  1. The Way Forward Foundation https://www.wayforwardfoundation.org
  2. The Steven F. Riley Memorial Educational Scholarship https://www.sciboston.org/sfreducationalscholarship

Travel & Vacation

  1. Cherry Blossom Vacations https://cherryblossomvacations.org
  2. The Curb Free Foundation https://www.thecurbfreefoundation.com
  3. Where to Wheel (authentic venue accessibility reviews) https://wheretowheel.us
  4. Wheel the World (accessibility verified travel) https://wheeltheworld.com
  5. KeepinitWheel306 https://www.youtube.com/@Keepinitwheel306
  6. Thomas Jimino https://www.youtube.com/@allsgoot603

United Spinal Association Resources

  1. USA Resource Center webpage https://askus-resource-center.unitedspinal.org
  2. New Mobility Magazine https://newmobility.com
  3. Disability Products & Services https://www.spinalcord.org
  4. BetterHelp (partnership) https://unitedspinal.org/

The Arts, Music, and Fellow Creatives

  1. Broken Neck Poetry https://www.brokenneckpoetry.com/
  2. Derek On Wheels https://derekonwheels.wordpress.com
  3. Dylan Wood https://dylanmwood.com
  4. DigiBrass (electronic trumpet) https://digibrass.com
  5. American Drum CF4 Adaptive Mallet Cuff https://www.westmusic.com/american-drum-cf4-adaptive-mallet-cuff-single-263798
  6. Take it Away https://takeitaway.org.uk/accessible-instruments/

New England Wheelchair Repair & Seating Clinics

  1. Massachusetts
    • National Seating & Mobility (NSM): Multiple repair and service branches in Wilmington (781-897-6100), Southborough (508-875-1223), Franklin (508-623-2500), and Chicopee (413-592-5464).
    • Numotion: Full-service mobility centers and repair shops in Taunton (508-436-7414) and Worcester (508-363-1227).
    • Spaulding Rehabilitation: Leading seating clinics at the Boston (617-952-6200) and Foxborough (857-307-3202) outpatient centers, with additional clinics in Plymouth, Salem, and Sandwich.
    • The Boston Home Seating Clinic: Specializes in comprehensive mobility and seating assessments in Dorchester (617-825-3905).
    • Rehabilitation Equipment Associates (REQ): Dedicated service and repair facility in Haverhill (978-914-6684).
    • Stavros Center for Independent Living: Offers a unique wheelchair repair and loaner program for residents of Western Massachusetts (413-256-0473).
    • MassHealth Wheelchair Repair: A state-specific ombudsman program (855-781-9898) that assists members with navigating repair delays or insurance issues.
  2. Connecticut
    • Hospital for Special Care (HSC): Outpatient seating and mobility clinic providing professional evaluations in New Britain (860-223-2761).
    • Gaylord Specialty Healthcare: Advanced seating and positioning clinic within their spinal cord injury program in Wallingford (203-284-2800).
    • Numotion: Major service and repair hub located in Rocky Hill (860-761-0700).
    • National Seating & Mobility (NSM): Service locations in Newington (860-666-7500), Niantic (860-739-3444), and Pomfret Center (860-821-5100).
  3. New Hampshire
    • Dartmouth Hitchcock Medical Center: Offers professional wheelchair seating evaluations in Lebanon (603-650-3600).
    • National Seating & Mobility (NSM): Repair and equipment branches in Bow (800-684-0270) and Hooksett (603-627-8500).
    • Northeast Rehabilitation Hospital: Seating clinics located across Portsmouth, Salem, and Nashua for complex mobility needs.
  4. Maine
    • MaineHealth Physical Medicine & Rehabilitation: Provides clinical seating and mobility assessments in Portland (207-662-4892).
    • Numotion: Local service and equipment provider in Saco (207-571-3311).
    • National Seating & Mobility (NSM): Dedicated repair and sales branch located in Hermon/Bangor (207-942-3639).
  5. Vermont
    • University of Vermont Medical Center: Clinical seating and mobility services located at the Shepardson South campus in Burlington (802-847-3140).
    • Numotion: Vermont-based service and repair center in Williston (802-992-2121).
  6. Rhode Island
    • National Seating & Mobility (NSM): Local service branch for repairs and equipment in Warwick (401-732-2430).
    • Lifespan Rehabilitation: Seating and mobility evaluations available through the Vanderbilt Rehabilitation Center in Newport and Providence.

Parenting with a Disability

  1. Through the Looking Glass https://lookingglass.org
  2. Disabled Parenting Project https://disabledparenting.com
  3. National Research Center for Parents with Disabilities https://heller.brandeis.edu/parents-with-disabilities/
  4. United Spinal Association Virtual Support Group: Rolling Through Parenthood https://unitedspinal.org/events/rolling-through-parenthood/
  5. Gertie Crib: Wheelchair Accessible Cribs https://www.gertiecribs.com
  6. New Mobility Magazine
  7. National Council on Disability Disabled Parenting Toolkit https://www.ncd.gov/report/disabled-parenting-toolkit/
  8. New England Doula Support (overnight care to help my wife and I) https://nedoulasupport.com

Male Fertility

  1. New Mobility Magazine
  2. Peer-Reviewed Sources
    • Sinha, V., Elliott, S., Ibrahim, E., Lynne, C. M., & Brackett, N. L. (2017). Reproductive Health of Men with Spinal Cord Injury. Topics in spinal cord injury rehabilitation, 23(1), 31–41. https://doi.org/10.1310/sci2301-31
    • Zizzo, J., Gater, D. R., Hough, S., & Ibrahim, E. (2022). Sexuality, Intimacy, and Reproductive Health after Spinal Cord Injury. Journal of personalized medicine, 12(12), 1985. https://doi.org/10.3390/jpm12121985
  3. Books, Manuals, and Amateur Guides

U.S. Military Veteran Specific

  1. Robert Irvine Foundation https://robertirvinefoundation.org
  2. Paralyzed Veterans of America https://pva.org 
  3. Semper Fi & America’s Fund https://semperfifund.org
  4. Gary Sinese Foundation https://www.garysinisefoundation.org
  5. Travis Mills Foundation https://travismillsfoundation.org
  6. The Independence Fund https://independencefund.org
  7. Army Emergency Relief https://www.armyemergencyrelief.org
  8. Navy Marine Corps Relief Society https://www.nmcrs.org
  9. Project Return to Work https://return2work.org
  10. Boulder Crest Foundation https://bouldercrest.org
  11. USA Cares https://usacares.org
  12. Veteran’s Guide https://veteransguide.org/
  13. Freedom Mobility Foundation https://www.freedommobilityfoundation.org
  14. Computer/Electronic Accommodations Program (CAP) https://www.cap.mil
Accessibility