DEIA | Federal Budget | Disability & Civil Rights | Medical Policy | Education

Forenote | Please Read
This page is a fluid document, meaning that I will be adding supplements to each talking point as they play-out in real time. This page is also quite long (and growing), so I urge you to explore using the Table of Contents (above) and to check back in frequently for updates. This page features a collection of issues that I find personally concerning as well as my own research and opinions. Some of these thoughts may not resonate with you, and that is okay. I thank you for reading and for being open to discourse. I urge you to do your own research and to stand up for what you believe in.
Many people overlook the fact that the disability community is the only minority group that anyone can join at any stage in life. Unfortunately, there is a pervasive lack of empathy and compassion toward individuals with disabilities, particularly in politics and government. Amplifying our voices is essential because they are among our most powerful tools for driving change. As a cartoonist and disability advocate, I aim to make the realities and challenges faced by the disability community more tangible and relatable to the broader public.
I Am DEI

DEIA Blog Post 2/1/2025
There I was, sitting in my hotel room in Tempe, Arizona. I had just arrived for a week-long vacation to visit family, relieved to escape the harsh winter back home in New Hampshire. We had finally settled in after a long and frustrating travel day. Flying as a person with a disability is never easy but I’ve come to expect it.
Then I saw the news.
A commercial airline plane had collided with a military helicopter during a routine training flight. Everyone on board was killed. It was a devastating tragedy. Watching the coverage, I couldn’t help but reflect on my own flight across the country. But what truly shocked me was what came next.
The man holding the highest office in the United States, President Donald Trump used the tragedy to launch into a baseless attack on diversity, equity, and inclusion. During a press conference, he blamed the crash on the FAA’s hiring practices and claimed that the agency had prioritized “woke” over qualifications. Then he said something that hit me in a deeply personal way. “They’re hiring people based on woke,” he stated. “They’ve got people that are bad. They’re hiring people that aren’t qualified– including some quadriplegics” . Hearing those words shocked me. Not a lot of people, let alone politicians know to single out quads specifically over all of the other disabilities.
There it was. A national figure scapegoating people like me, simply because we exist in professional spaces. My immediate feeling was shame. I rolled down to the hotel lobby and felt like my existence was a nuisance. I felt small.
As a disabled man and a quadriplegic, DEIA is not an abstract ideology or a political buzzword. It is the infrastructure that allows me to live, work, and participate in society with basic dignity. Diversity, Equity, Inclusion, and Accessibility are practical tools that remove barriers and make equal participation possible. Yet across the country, those tools are being deliberately dismantled. At the federal level, just days into a new term, Donald Trump signed an executive order dismantling federal DEI programs altogether. These actions are framed as restoring “merit,” but in practice they shut out people who were never meaningfully included to begin with.
Opposition to DEIA often hides behind vague language like “fairness” or “colorblindness,” without ever naming what is actually being rejected. Is it curb cuts, ramps, captions, accessible transit, or remote work options? These are not perks or handouts. They are the baseline accommodations that allow disabled people to exist in public life on equal footing. The backlash is not about qualifications or safety; it is about preserving systems built without us in mind. When disabled people are singled out as evidence that inclusion has gone too far, the message is clear. This is not resistance to policy, but a resistance to our presence. So when DEIA is attacked, the real question remains: what exactly is being opposed—equity as a concept, or disabled people having the right to live with dignity at all? I challenge you to pause and reflect next time you think this way. DEIA is literally the bare minimum.
Supplement 4/19/2025 What Is Happening?
This original post was written in February after I returned from Arizona. What I have witnessed and experienced in the few short months from then to now has been nothing short of disheartening and concerning. It all starts with anti-DEI rhetoric, and it leads to an emboldened population spouting racism, ableism and hate. Ableist ideals have quickly spiraled into public displays of hate speech and figureheads boldly using Sieg Heils. It has prompted legislative changes (some explained below) challenging framework for civil and disability rights. I feel like I am watching a profound regression in the United States and that I am truly not wanted here. For the first time, I feel truly paralyzed.
Supplement 7/28/2025 A Disturbing Echo of the Past
This week’s executive order from President Trump instructing cities to forcibly remove unhoused people from the streets is a chilling reminder of our country’s shameful past. It closely mirrors the so-called “Ugly Laws” that once criminalized the presence of disabled and unhoused individuals in public spaces. These discriminatory laws, which remained on the books in some areas until the 1970s, targeted people for merely existing while poor or visibly disabled.
Although executive orders are not laws and do not carry the same legislative authority, they often direct federal agencies and officials to act in ways that can dramatically shift policy. This order calls on Attorney General Pam Bondi to roll back previous regulations, making it easier to remove and involuntarily institutionalize people without due process. While Congress would need to formally approve new legislation for this to become enforceable law nationwide, the intent behind the order is unmistakable.
What we are witnessing is the resurgence of a rhetoric that dehumanizes poverty and disability. Labeling unhoused people as a threat to public safety not only scapegoats some of the most vulnerable members of our society, it also reinforces harmful and ableist narratives that echo early 20th-century eugenics. The fact that the Supreme Court decision permitting forced sterilization of disabled people in state custody remains unoverturned adds a disturbing layer of historical continuity to this moment.
We must call this out for what it is: a dangerous policy push cloaked in crime control language. Our society deserves better than leadership that recycles oppressive ideologies under the guise of public order.
Supplement 8/11/2025 Coming After Other Marginalized Groups
The latest push to overturn Obergefell v. Hodges—the ruling that legalized same-sex marriage nationwide—shows us exactly where anti-DEI rhetoric leads. What begins with attacks on diversity, equity, inclusion, and accessibility (DEIA) in schools, workplaces, and policy discussions spreads like a cancer. It emboldens those who wish to roll back the rights of other marginalized groups.
We cannot ignore the throughline: discrediting DEIA is not an isolated debate. It sets the stage for dangerous actions against communities that have fought long and hard for basic civil rights. The LGBTQ+ community is now facing renewed threats, and this moment makes clear that the consequences of dismissing DEIA principles extend far beyond a single policy conversation.
This is the reminder: when one group’s rights are under attack, all marginalized people are at risk.
Supplement 12/9/2025 Banning Words from Head Start
The irony would be funny if it weren’t so alarming. For years, the right has mocked the left for caring about language, dismissing it as “making up words” or claiming that “words can’t hurt.” Now they’re actively removing words out of fear. It’s a stunning contradiction, and the fact that so many people don’t see it is what’s truly terrifying. Anyway, I digress.
According to NPR, The Trump administration sent nearly 200 words that they consider “prohibited” to employees of Head Start programs (Turner, 2025). That’s right, the program that coordinates services directly with IDEA (Individuals with Disability Education Act) can’t use the term disability. Make it make sense.
Head Start is a federally funded early childhood program created in 1965 to support children from low-income families from birth to age five. It provides early education alongside health screenings, nutrition, family support, and disability services, helping reduce opportunity gaps before children enter the K–12 system.
Disability inclusion is a legal and foundational part of Head Start, with federal requirements ensuring that children with disabilities receive early identification, accommodations, and coordinated services through IDEA. As one of the nation’s most disability-inclusive education programs, limiting language around equity, disability, or inclusion directly weakens how programs identify needs, access resources, and advocate for children and families.
Below is the entire list of prohibited words. I took the liberty of organizing them for better structure. This feels so dystopian.
Advocacy, Equity, & Systems
- accessible
- activism
- activists
- advocacy
- advocate
- advocates
- allyship
- anti-racism
- antiracist
- at risk
- barrier
- barriers
- bias
- biased
- biased toward
- biases
- biases towards
- clean energy
- climate crisis
- climate science
- community diversity
- community equity
- confirmation bias
- discrimination
- discriminated
- discriminatory
- disparity
- environmental quality
- equal opportunity
- equality
- equitable
- equitableness
- equity
- exclusion
- excluded
- fostering inclusivity
- implicit bias
- implicit biases
- inclusion
- inclusive
- inclusive leadership
- inclusiveness
- inclusivity
- injustice
- institutional
- intersectional
- intersectionality
- marginalize
- marginalized
- oppression
- oppressive
- polarization
- prejudice
- privilege
- privileges
- promote diversity
- promoting diversity
- sense of belonging
- segregation
- social justice
- systemic
- systemically
- underappreciated
- underprivileged
- underrepresentation
- underrepresented
- underserved
- undervalued
- vulnerable populations
Disability, Health, & Care
- disabilities
- disability
- mental health
- health disparity
- health equity
- people-centered care
- person-centered
- person-centered care
- trauma
- traumatic
- victim
- victims
Race, Ethnicity, & Culture
- bipoc
- black
- cultural competence
- cultural differences
- cultural heritage
- cultural sensitivity
- culturally appropriate
- culturally responsive
- diverse
- diverse backgrounds
- diverse communities
- diverse community
- diverse group
- diverse groups
- diversified
- diversify
- diversifying
- diversity
- enhance the diversity
- enhancing diversity
- ethnicity
- hispanic minority
- historically
- indigenous community
- latinx
- minorities
- minority
- native american
- race
- race and ethnicity
- racial
- racial diversity
- racial identity
- racial inequality
- racial justice
- racially
- racism
- tribal
Gender, Sexuality, Identity
- assigned at birth
- assigned female at birth
- assigned male at birth
- biologically female
- biologically male
- chestfeed + people
- chestfeed + person
- female
- females
- feminism
- gender
- gender based
- gender based violence
- gender diversity
- gender identity
- gender ideology
- gender-affirming care
- genders
- gulf of mexico
- hate speech
- identity
- lgbt
- lgbtq
- men who have sex with men
- msm
- mx
- non-binary
- nonbinary
- orientation
- people + uterus
- pregnant people
- pregnant person
- pregnant persons
- pronoun
- pronouns
- sex
- sexual preferences
- sexuality
- they/them
- trans
- transgender
- transsexual
- women
- women and underrepresented
Population & Demographic Language
- belong
- key groups
- key people
- key populations
- most risk
- population
- status
- socioeconomic
Supplement 3/15/2026 DOGE’s Reckless Targeting of DEI
Recent videos have surfaced (3/11/2026) of two young Department of Government Efficiency (DOGE) staffers being deposed in a civil lawsuit. They are a terrifying glimpse into how DOGE operated while attempting (and failing) to lower the nation’s deficit. We are just now starting to learn the full extent of DOGE’s actions while operating with complete disregard for others and an unfathomable lack of oversight.
When DOGE was rolled out, it was sold as a scalpel that would trim the fat. In reality, it was a blunt-force trauma to the very systems that keep people like me alive. The stated goal was to slash $2 trillion from the deficit. Instead, it was an abject failure that resulted in nothing but security risks, vacuums of power, and a trail of litigation that will cost taxpayers for decades. We will be living through the ramifications of DOGE for a long time.
DOGE essentially existed to hit Ctrl-F > *any term these dorks deem DEI* > DELETE.
The following videos were created by 404media, whose independent journalists sat through countless hours of testimony to compile and organize social-media-ready clips. I knew DOGE was bad, but I had no idea how bad until I watched these two soulless Chads get picked apart. I’m sorry that you now have to, but accountability is important. This reckless display of ineptitude, overreach, and evil must be condemned.
Deposition of Justin Fox
Deposition of Nathan Cavanaugh
Supplement 4/1/2026 Current Litigation Against DOGE
Previously in this thread, I wrote about how DOGE will be facing litigation for years, and we will be paying the price for the decisions that this government entity recklessly made. The following list includes a breakdown of some current litigation against DOGE:
| Lawsuit | Lead Plaintiff | Focus |
| Alliance for Retired Americans v. Bessent | Union groups | Illegal access to Treasury Department financial records and Bureau of Fiscal Service data. |
| Does 4, et al. v. Musk | USAID Employees | Violation of the Appointments Clause and the unlawful dismantling of international aid programs. |
| AFSCME v. Social Security Administration | Federal Unions | The unauthorized transfer of sensitive Social Security data to private Cloudflare servers. |
| Democracy Forward v. SSA | Advocacy Watchdogs | Forcing the release of the secret “Voter Data Agreement” shared with outside political groups. |
| EPIC v. Office of Personnel Management | Privacy Advocates | The massive seizure of federal employee records and highly sensitive security clearance data. |
| AAPD v. Dudek | Disability Advocates | The discriminatory impact of Social Security office closures on citizens with severe disabilities. |
| New York v. Trump | State Attorneys General | Challenges to DOGE’s intrusion into state-managed Treasury payment systems and tax data. |
| American Immigration Council v. EOIR | Legal Aid Groups | Staffing crises and FOIA backlogs caused by forced DOGE buyouts and hiring freezes. |
References
Bunn, C., Guilfoil, K., & Griffith, J. (2025, January 30). Trump implies DEI could be to blame for D.C. plane crash in press conference. NBC News. https://www.nbcnews.com/news/nbcblk/trump-plane-crash-dei-press-conference-biden-faa-washington-dc-rcna190020
Davidson, J. (2025, January 30). Leading Disability Organizations: Blame of Deadly Crash on Disabled Federal Workers Is Baseless, Irresponsible – NDRN. NDRN. https://www.ndrn.org/resource/dca-crash/
News, P. (2025, January 30). WATCH: Trump baselessly blames diversity hiring for deadly D.C. plane collision. PBS News. https://www.pbs.org/newshour/politics/watch-live-trump-holds-news-briefing-on-deadly-plane-collision-over-washington-dc
Norris, M. (2025, January 31). Trump’s DEI smears on plane and helicopter crash requires a response. MSNBC.com; MSNBC. https://www.msnbc.com/opinion/msnbc-opinion/trump-hegseth-plane-crash-dei-rcna190081
Soucie, D. (2025, January 30). Trump blamed DEI for the plane crash near D.C. But the FAA should look here instead.MSNBC.com; MSNBC. https://www.msnbc.com/opinion/msnbc-opinion/trump-plane-crash-dc-faa-airport-safety-rcna190034
Trump, D. (2024, January 10). Remarks at campaign event in Iowa [Speech transcript]. C-SPAN. https://www.c-span.org/video/?533556-1/donald-trump-holds-campaign-event-iowa
Turner, C. (2025, December 11). Head Start centers told to avoid “disability,” “women” and more in funding requests. NPR. https://www.npr.org/2025/12/11/nx-s1-5640757/head-start-hhs-funding-dei
The Budget That Breaks Us

How New Federal Cuts Threaten Disability and Civil Rights
The April 2025 federal budget proposal and a flurry of executive orders issued by President Trump have signaled a coordinated effort to dismantle critical protections for people with disabilities and communities of color. These aren’t just policy shifts. They’re direct hits on the agencies, funding, and systems that turn civil rights laws into real-world protections.
Civil rights laws depend on enforcement, funding, and infrastructure. While these policies are not formally repealed, current budget cuts and executive actions effectively hollow them out, leaving disabled communities with fewer protections and diminished pathways to justice.
Rights without reinforcement are just empty words.
Supplement 4/15/2025 The “One Big Beautiful Bill” is All Bullshit
A Blow to the Department of Education: Executive actions aimed at decentralizing education authority have already resulted in major staff reductions at the Office for Civil Rights, limiting federal oversight and weakening protections for disabled students (AAPD, 2025). These cuts reduce families’ ability to challenge illegal denials of services, as reflected in cases like A.J.T. v. Osseo Area Schools. At the same time, a 62% funding cut to the Institute of Education Sciences threatens critical education equity data (Ujifusa, 2025), while proposed IDEA block grants risk eliminating federal accountability altogether (Castillo & Neas, 2025).
Mental Health, Not a Priority: The proposed elimination of $1 billion in school-based mental health funding would significantly reduce access to counselors and psychologists, disproportionately harming students from marginalized and disabled communities (Thompson, 2025). But you know… “protect the children”, right?
Federal Jobs, Fewer Protections: Executive Order 14173 removed affirmative action requirements for federal contractors and eliminated all federal DEIA programs, discouraging proactive disability inclusion in hiring and dismantling accessibility-focused initiatives across government agencies (Foley & Lardner LLP, 2025; DLA Piper, 2025).
Redefining Disability: Emerging policy signals suggest the administration will narrow the legal definition of disability, potentially excluding conditions such as gender dysphoria from ADA protections and limiting access to accommodations in education, employment, and health care (Inclusivity Consulting, 2025).
Health Care on the Line: Proposed Medicaid cuts totaling up to $800 billion could result in coverage loss for an estimated 20 million Americans, including many people with disabilities who rely on Medicaid for essential services and equipment (Wallace, 2025). These cuts would also undermine special education services that depend on Medicaid reimbursements (TypeWell, 2025). Additionally, plans to dismantle the Administration for Community Living threaten independent living programs, Protection and Advocacy systems, and community-based supports nationwide (TASH, 2025).
Public Health Defunded: Proposed budget reductions of approximately 40% for the NIH and nearly 50% for the CDC would severely limit research and prevention efforts related to chronic and disabling conditions, particularly those disproportionately affecting marginalized populations (Steenhuysen & Borter, 2025).
Supplement 5/11/2025 Federal Budget Reconciliation Bill
On May 11, 2025, House Republicans introduced a sweeping budget reconciliation bill through the House Energy and Commerce Committee as part of President Trump’s broader agenda to cut federal spending and restructure Medicaid. The Congressional Budget Office estimates the proposal would cause at least 8.6 million Americans to lose health coverage over the next decade (Associated Press, 2025). The bill would cap federal Medicaid funding and impose new eligibility and work requirements, framing them as cost-saving measures while shifting the real burden onto low-income and disabled Americans. For people with disabilities, Medicaid funds home and community-based services, personal care, transportation, and other supports essential to independent living. Cuts and tighter eligibility rules threaten that infrastructure and risk forcing people out of their communities. As the United Spinal Association warned, the bill would “subject Medicaid beneficiaries to intrusive and unreasonable requirements to maintain their needed coverage” (United Spinal Association, 2025), adding administrative barriers for those already navigating systemic inequities. By shifting costs to states while limiting their flexibility, the proposal signals a broader rollback of healthcare access, potentially deepening geographic disparities and undermining decades of progress toward equitable, community-based care. Healthcare is not a privilege but the foundation of independence, dignity, and full participation in society.
Supplement 5/22/2025 Federal Budget Clears the House
What’s Next for the Federal Budget Bill and What It Means for People with Disabilities
On May 22, 2025, the U.S. House of Representatives passed the “One Big Beautiful Bill,” a sweeping federal budget proposal aligned with President Donald Trump’s fiscal agenda. This legislation includes nearly $880 billion in Medicaid cuts and the potential defunding of critical programs such as the National Paralysis Resource Center (New York Magazine, 2025; Christopher & Dana Reeve Foundation, 2025).
The bill now moves to the Senate, where it will be reviewed under the budget reconciliation process. This procedure allows the Senate to pass budget-related legislation with a simple majority vote. Because the Republican majority in the Senate is narrow, the success of the bill depends on party unity. Some senators have expressed concern about the proposed Medicaid cuts, signaling that amendments may be introduced before a final vote (The Washington Post, 2025).
If the Senate makes changes, both chambers will need to reconcile differences before sending the final version to the president for approval. The Senate aims to vote by July 4, 2025, to meet the debt ceiling deadline (The Washington Post, 2025).
For people with disabilities, this bill represents a serious threat. Medicaid is not just health insurance; it funds essential services such as home and community-based supports, personal care attendants, and assistive technology. Cuts to these services could severely impact independence and quality of life for millions of Americans.
Supplement 7/1/2025 Federal Budget Clears the Senate
On July 1, 2025, the Senate narrowly passed the controversial federal budget reconciliation bill known as the “One Big Beautiful Bill.” With a 51–50 vote, Vice President J.D. Vance cast the deciding vote in favor of the legislation (The Daily Beast, 2025). The bill now returns to the House of Representatives, which must approve the Senate’s revisions before it can move to the President’s desk for final approval.
The Senate made several adjustments to the bill before passing it. The parliamentarian ruled that certain provisions related to Medicaid eligibility, provider taxes, and care for specific populations were not allowed under reconciliation rules and had to be removed (Politico, 2025). In response, Senate Republicans delayed key Medicaid changes until 2028 and added $25 billion to stabilize rural hospitals. Additional waivers were also introduced for SNAP recipients in Alaska and Hawaii (MarketWatch, 2025).
Despite these amendments, the bill still includes approximately $930 billion in cuts to Medicaid and other social programs (CBS News, 2025). For people with disabilities, this could have devastating long-term effects. Medicaid remains a primary funder of home and community-based services, personal care support, durable medical equipment, and other essential resources that support independent living.
According to estimates by the Congressional Budget Office, these policy changes could lead to 12 million more Americans losing coverage by 2034. Many of them would be individuals who rely on Medicaid to live, work, and thrive in their communities.
As the bill heads back to the House, it continues to face opposition from both sides. Some members of the House Freedom Caucus are pushing for even deeper Medicaid cuts, while disability rights advocates are urging lawmakers to reject the bill entirely.
The next few days are critical. Advocates are encouraged to contact their representatives and urge them to oppose any legislation that threatens healthcare access for people with disabilities.
Supplement 7/3/2025 The Budget Has Passed – What It Means Now
It’s official. The Budget Reconciliation Bill has cleared its final hurdle. On July 3, 2025, the House of Representatives approved the Senate’s amended version of the budget reconciliation bill, sending it to President Trump who will sign it into law during a July 4 ceremony at the White House. I’ve never felt less patriotic in my life.
This sweeping legislation includes nearly $930 billion in cuts to Medicaid, SNAP, and other core safety net programs while giving a similar amount in tax cuts to billionaires. This is a reverse Robbin Hood— taking from the poor to give to the rich. While Senate revisions softened a few provisions—such as delaying some Medicaid reforms until 2028 and adding funding for rural hospitals—the core structure remains intact. The Congressional Budget Office estimates that as a result of the bill, up to 12 million Americans could lose health insurance over the next decade (CBS News, 2025).
For the disability community, this outcome is deeply troubling. Medicaid is a cornerstone of access to home and community-based services, personal care support, assistive devices, and long-term care. The bill’s passage marks a major shift in federal responsibility, forcing states to make difficult choices that could limit or eliminate these vital services.
This new law will reshape how healthcare and social support systems function in America. This is eugenics disguised as a bill. This is a massive step backward in the fight for equity, dignity, and independent living.
As the bill highlights, funding for many healthcare and government programs will now fall on the burden of the state. Continue the fight by advocating to your state representatives. We cannot go silently into this goodnight.
Supplement 4/16/2025 Congressionally Directed Medical Research Program (CDMRP)

An obscure area of medical research is being targeted by the mysterious and unregulated Department of Government Efficiency (DOGE).
Recent legislative developments have led to a significant reduction in funding for the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP) for fiscal year 2025. The funding has been decreased from $1.509 billion in FY2024 to $650 million in FY2025, marking a 57% cut (Clarke, 2025).
The CDMRP supports research on various diseases and conditions affecting military personnel, veterans, and the general public, including cancer, psychological health, spinal cord injury, and Long COVID.
This reduction in funding is expected to disrupt ongoing research projects and limit future discoveries like new treatments, clinical trials, and drug development in these critical areas. There are also much broader implications that will be specific to national security. These cuts could weaken US biomedical research leadership and give competitive advantage to other countries (Kaiser & Reardon, 2025). This is yet another example of why mindless budget cuts can be so dangerous.
Supplement 4/27/2025 No More SCI Research
SCIRP Defunded: A $40M Blow to Spinal Cord Injury Research
Another sad update: the recently passed federal budget has completely eliminated funding for the Spinal Cord Injury Research Program (SCIRP), a vital initiative under the Department of Defense’s Congressionally Directed Medical Research Programs (CDMRP). This cut amounts to a $40 million loss for spinal cord injury (SCI) research in 2025.
SCIRP has been instrumental in advancing treatments that help individuals with SCI breathe independently, manage chronic pain, and regain mobility. It also supported the development of field-deployable technologies for treating injured soldiers.
The elimination of SCIRP funding represents a significant setback for both civilians and veterans living with SCI.Advocacy groups like Unite 2 Fight Paralysis (U2FP) are mobilizing efforts to restore this critical funding.
Here’s how you can help:
- Contact Your Legislators: Reach out to your Congressional representatives and urge them to reinstate SCIRP funding.
- Spread the Word: Share information about the importance of SCIRP and the impact of its defunding with your community.
- Join Advocacy Efforts: Participate in campaigns organized by U2FP and other advocacy groups to amplify the call for action.
Supplement 5/8/2025 Cuts To Pretty Much Everything Important
The situation has worsened
Now, a leaked draft of the 2026 presidential budget proposes even deeper cuts. The Department of Health and Human Services (HHS) budget includes a 40 percent reduction to the National Institutes of Health (NIH), dropping its budget from $47 billion to $27 billion. It also proposes eliminating the Administration for Community Living (ACL), which houses the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)—a major funder of SCI Model Systems at institutions like Craig, Shepherd, and Shirley Ryan.
If this budget is approved, SCI research could lose an additional $56 million annually. Combined with SCIRP’s cut, that’s nearly $100 million—over two-thirds of all federal funding for SCI research—gone.
This would be a catastrophic setback for individuals living with spinal cord injuries and the researchers working toward recovery solutions. These cuts don’t just stall progress—they threaten lives, independence, and hope.
We must act now. Contact your representatives. Support advocacy organizations like Unite 2 Fight Paralysis. Speak out before this funding disappears for good.
Supplement 2/4/2026 Funding Restored (For Now)
There’s finally some good news. After being completely zeroed out in the initial FY2025 budget, funding for the Spinal Cord Injury Research Program (SCIRP) has been restored at $40 million following sustained pressure from advocates, researchers, and the SCI community. This reversal keeps critical spinal cord injury research alive, including work on mobility, pain management, respiratory function, and battlefield-to-bedside treatments that benefit both veterans and civilians (Stoffer, 2026).
That said, this is not a victory lap. The restoration came late, created uncertainty for researchers, and does nothing to address the much larger threats still looming over NIH, NIDILRR, and broader disability research funding. SCIRP survived this round because people spoke up. Next time, it may not.
This moment proves one thing clearly: advocacy works—but only if we stay loud, organized, and relentless. Celebrate today, but keep the momentum.
Supplement 6/1/2025 HHS Budget | Threats to the Paralysis Resource Center
What the Proposed HHS Budget Means for the Disability Community
The Department of Health and Human Services (HHS) has released its proposed budget, and the ripple effects are being felt deeply throughout the disability community. With over $32 billion in cuts planned across the department, programs critical to health, independence, and advocacy are once again on the chopping block.
Deep Cuts Hit Disability Programs
Among the most concerning proposals are cuts to essential initiatives run through the Administration for Community Living (ACL). These include:
- University Centers for Excellence in Developmental Disabilities (UCEDDs)
- Chronic Disease Self-Management Education
- Limb Loss and Paralysis Resource Centers
- Voting Access for People with Disabilities
- The White House Conference on Aging
The paralysis resource center, which has provided vital information and community connection, is among those facing complete elimination.
These cuts come in addition to ongoing debates in Congress over proposed reductions to Medicaid, Medicare, and SNAP. These safety net programs are still being reviewed by the Senate, but their future remains uncertain. The combined potential impact? Fewer resources, more barriers, and a growing sense of being left behind.
A Few Glimmers of Relief
Not all is lost in the current proposal. In a move that suggests someone in the budget process remembered the importance of holistic care, several previously threatened programs have been spared, at least for now. These include:
- Developmental Disabilities Councils
- Protection and Advocacy (P&A) systems
- The Long-Term Care Ombudsman Program
- National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)
- Lifespan Respite Care Program
- State Health Insurance Assistance Program (SHIP)
These programs remain under the ACL umbrella but are now slated to move together to the Administration for Children, Families, and Communities (ACFC) rather than being scattered across multiple agencies. While the consolidation is a smart strategy for preserving program integrity, the ACFC itself is still facing significant cuts.
This budget proposal highlights the need for continued advocacy and engagement from the disability community. Cuts to these programs affect people’s ability to live independently, access care, and make their voices heard.
Supplement 2/4/2026 A Win for the National Paralysis Resource Center
After earlier proposals threatened to eliminate support for the National Paralysis Resource Center (NPRC) (see earlier supplement above), Congress has now passed a bipartisan spending package that fully restores $10.7 million in FY2026 funding for the NPRC. This legislation, now signed into law, ensures continuation of vital services such as peer-to-peer mentoring, direct support, and nationwide connections to critical resources that help people with paralysis live with dignity and independence (Reeve Foundation, 2026).
The funding bill also includes increases for broader disability and health research, including approximately $415 million for the National Institutes of Health (NIH), $119 million for the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), $33 million restored to spinal cord injury research, and an extension of telehealth Medicare access through December 31, 2027 (Reeve Foundation, 2026).
This is great news (that I much prefer writing about). This update highlights the power of advocacy. Securing this outcome, and continued engagement will be essential as disability policy and funding debates persist.
Supplement 10/1/2025 Oh SNAP: Coercive Federalism Through Hunger
The federal government officially shut down on October 1, 2025, after Congress failed to pass a spending bill to keep agencies funded (American Association of People with Disabilities, 2025). That political stalemate is now rippling through essential services, with the Supplemental Nutrition Assistance Program (SNAP) caught in the crossfire.
The SNAP program, administered by the U.S. Department of Agriculture, provides monthly benefits to help low-income households buy groceries. In 2024, more than 41 million Americans relied on SNAP each month, including about two-thirds of recipients who are families with children and nearly 25 percent who are individuals with disabilities or older adults (U.S. Department of Agriculture, 2025). The program is a critical safety net that keeps millions from falling into food insecurity, especially during times of inflation or unemployment.
States are warning that if the shutdown continues, November SNAP benefits will be delayed or withheld entirely (ABC News, 2025). Although most October payments were issued before the funding lapse, the U.S. Department of Agriculture has said it will not use emergency funds to cover November benefits (Reuters, 2025). In response, more than twenty states have filed lawsuits challenging the administration’s decision to withhold aid (Politico, 2025).
For marginalized and disabled communities, this is a matter of survival. Low-income families, disabled individuals, and older adults already face higher rates of food insecurity (CBS News, 2025). Many rely on SNAP to make ends meet, and a disruption means choosing between food, rent, or medication (Atlanta News First, 2025). People with disabilities, who often depend on fixed incomes and additional medical support, are particularly vulnerable when food access is limited (The Arc, 2025).
I am witnessing this administration bring out the worst in people who now echo talking points that lack empathy. Maybe it is just me, but I believe our tax dollars should be used to feed our citizens, especially children. Allowing them to go hungry for the sake of a political standoff is abhorrent. We are all one paycheck closer to needing programs like SNAP than we are to ever joining the billionaire class. When those in power use hunger as a weapon, it is the farthest thing from fiscal responsibility and leadership.
Community food banks and advocacy groups are preparing for an increase in need as benefits stall. Local organizations are urging recipients to preserve remaining benefits, monitor state alerts, and lean on food-bank networks in the meantime (AARP, 2025).
Supplement 12/6/2025 Forcing People Into Facilities While Gutting Healthcare: They Want Us to Die
As a support group leader, I regularly hear from people with spinal cord injuries and disabilities who are pushed into nursing facilities during medical crises, housing gaps, or caregiver burnout. These placements are not rare and they are far not safe. Nursing homes are already plagued by chronic understaffing, neglect, and preventable harm, problems the federal government itself has repeatedly documented (U.S. Department of Health & Human Services [HHS], 2022).
In 2024, the Centers for Medicare & Medicaid Services (CMS) finalized a rule requiring Medicare and Medicaid certified nursing homes to maintain 24/7 registered nurse coverage, acknowledging overwhelming evidence that adequate staffing is essential to resident safety (CMS, 2024). That rule was just repealed before it could be fully implemented, eliminating enforceable federal staffing minimums in long-term care facilities (Federal Register, 2025).
For people with complex disabilities, staffing is not optional. It is the difference between timely care and medical neglect. Rolling back these protections lowers the floor in a system that was already failing its most vulnerable residents. This repeal is a predictable decision that will increase preventable injury, suffering, and death in facilities many disabled people are forced into when community-based supports are unavailable.
Supplement 2/17/2026 Turning Attention to Disabled Veterans: Documenting Issues at the VA
The VA has been under pressure since the start of this administration. Early on, the Department of Veterans Affairs was targeted by so-called efficiency efforts through DOGE that resulted in the abrupt termination of tens of thousands of employees. Staff and clinicians were required to submit weekly justifications for their employment. There were immediate consequences to this, creating a climate that damaged trust and dissuaded confident, highly trained providers who could easily move to the civilian sector. Even though that effort ultimately unraveled, the damage to morale and institutional stability was done. Now the VA has implemented something even more concerning.
The Department of Veterans Affairs recently (2/17/2026) issued an Interim Final Rule, “Evaluative Rating: Impact of Medication,” which fundamentally alters how disability ratings are calculated. Traditionally, ratings were based on the underlying severity of a condition; however, this new rule directs examiners to consider the effects of medication. This means that if a veteran’s symptoms are successfully managed or reduced by treatment, their rating—and subsequently their compensation—could be lowered. Critics, including organizations like DAV (Disabled American Veterans), PVA (Paralyzed Veterans of America), and the VFW (Veterans of Foreign Wars), argue that this creates a “perverse incentive” where veterans may choose to forgo necessary medical treatment to maintain financial stability.
This policy shift appears to contradict established legal precedents, such as Jones v. Shinseki and subsequent decisions from the Court of Appeals for Veterans Claims, which maintain that symptom relief from treatment should not be used to diminish a rating unless explicitly stated in a diagnostic code. Furthermore, the rule was implemented with immediate effect, bypassing the typical notice and comment period. Concerned parties are encouraged to submit formal feedback via the Federal Register before the April 20 deadline. The central argument remains that benefits are earned through service and sacrifice, and medical management of a condition does not equate to a cure or a reduction in the underlying disability.
I have personally been blessed with VA benefits following my spinal cord injury. I rely on adaptive equipment and medication. Does that now mean that because my wheelchair improves my mobility or my medication reduces pain, I am somehow less entitled to the benefits I earned through service and sacrifice? This is a very slippery slope. Policies that create perverse incentives around medical compliance do not end well. They cost lives.
Supplement 2/19/2026 Outrage Prevails Again: VA Immediately Back Tracks
Less than 24 hours after implementing the Interim Final Rule, Evaluative Rating: Impact of Medication, the VA has halted enforcement. In his statement, Secretary Doug Collins said the department issued the rule to “clarify existing policy and protect Veterans’ benefits,” but acknowledged that many believed it could lead to “adverse consequences.” He added that while the VA does not agree with how the rule has been characterized, it will not be enforced and public comments will continue to be collected. To be honest, I don’t want to reference Collins and give his words any prudence. He is nothing more than a political yes-man for the Trump administration, who are once again proving that they do not care about members of the military or veterans.
Don’t let this distract you from the fact that this reversal is important. It shows that public scrutiny and collective pushback from veterans and advocacy organizations made an impact. At the same time, this is not the end of the conversation. The rule still exists and comments are still open (keep commenting using the button above). For now, enforcement is paused, but this is something that deserves continued attention and transparency moving forward. This is only a cease-fire. There’s a reason they tried sneaking this new rule in. Stay vigilant.
Supplement 2/23/2026 VA Smoke & Mirrors: The Rule Remains
Since the initial halt, VA leadership has doubled down publicly. Secretary Doug Collins said the rule “will not be enforced at any time in the future,” while Deputy Secretary Paul Lawrence went further, stating the VA has “no intention of ever doing anything or talking about it ever again,” and even said, “So we withdrew the rule.” These statements sound final, but they are not legally binding. An Interim Final Rule remains in effect until it is formally rescinded through publication in the Federal Register. Press remarks, conference comments, and social media posts do not undo regulatory text. Until the rule is officially withdrawn through the proper administrative process, it still exists—and these political weasels know that. These statements are all theatrics to try to distract us while the creators of “Project 2025” work behind the scenes. .
Here is the advice I am following: do not confuse rhetoric with resolution. Continue submitting public comments. Continue documenting concerns. Continue watching the Federal Register for formal action. What we need is not reassurance. We need regulatory certainty in writing. Until that happens, these statements are political damage control, not legal closure.
Supplement 2/27/2026 Rule is Officially Rescinded
It is now official. The VA has formally published a rescission of the Interim Final Rule, “Evaluative Rating: Impact of Medication,” in the Federal Register, restoring the prior regulatory language and making the reversal effective immediately upon publication. This is no longer a pause in enforcement or a public statement promising not to act. It is a binding regulatory withdrawal. After days of confusion, press quotes, and damage control, the paper trail now matches the rhetoric.
The medication-based rating change has been legally undone, and the previous standard remains in place. This is a victory for veterans, advocates, and service organizations who mobilized quickly and demanded accountability. It is also a reminder that earned benefits are not protected by reassurances, but by formal process, public scrutiny, and persistence.
Supplement 3/11/2026 VA Finds a New Way to Save Money: Forced Conservatorship
Why does it always come down to taking away rights instead of prioritizing delivering on services?
On March 11, 2026, the VA and DOJ finalized a Memorandum of Understanding (MOU). This agreement allows the DOJ to appoint VA attorneys as Special Assistant U.S. Attorneys (SAUSAs). This federal designation gives these lawyers the power to enter state courts to seek guardianship or conservatorship over veterans (Department of Veterans Affairs [VA], 2026a). This is an unprecedented overreach by the VA.
The VA states this program targets “vulnerable” veterans who are currently hospitalized or unhoused and lack the capacity to make their own decisions (VA, 2026a). However, disability rights groups argue this is a “shortcut” that bypasses less restrictive alternatives.
- Loss of Rights: Under guardianship, a veteran can lose the right to choose their own medical providers, decide where to live, or manage their own VA disability compensation (National Disability Rights Network [NDRN], 2026).
- “Civil Death”: Advocates refer to full guardianship as “civil death” because it strips away almost all individual autonomy (Bazelon Center, 2026).
- Financial Control: There is significant concern that the VA is pursuing this to “recoup” costs. By controlling a veteran’s estate, the government could potentially redirect disability benefits to pay for the very institutional care the veteran did not choose (Bazelon Center, 2026).
Following my spinal cord injury in 2017, I spent over a year as an inpatient at the VA hospital. During my time there, I came across hundreds of disabled veterans—most from the Vietnam and Gulf War era, and many without support systems. Some had had tough lives following their service, and some were staying in homeless shelters. I had very intimate conversations with some of them and learned that, despite their struggles, many preferred to be unhoused. As always, these conversations got me reflecting, and realized just how fortunate I was to have my support system. Without family, friends and loved ones willing to step up for me, I could have very easily found myself in a position where forced guardianship was the next course of action.
While I have to doubt that any qualified social worker would recommend guardianship for a patient without exhausting all other options, the simple fact is that some simply don’t want help, and that is their right. That doesn’t mean they need to lose their benefits. It is a slippery slope when we start removing people’s autonomy.
Now, I can only speak from my experiences with my own care team—which has always been top-notch. I also don’t doubt that there are veterans that likely need guardianship for their own safety. My fear with the Veterans Care Protection Act is that it opens the door far too wide for potential abuse, especially if you consider how politically motivated the bureaucracy can become.
The Veterans Care Protection Act is currently being discussed in the House Veterans Affairs Committee. While framed as a protective action, critics argue it prioritizes government efficiency over veteran liberty (Bazelon Center, 2026).
Supplement 3/30/2026 Diverting Funds to Feed the War Machine
“They got money for wars, but can’t feed the poor” – Tupac Shakur
The United States and Israel initiated military action against Iran on February 28, 2026 (Britannica, 2026). This conflict is currently estimated to cost approximately $1 billion per day (Warren, 2026). To sustain this spending, Republican leadership in the House is currently drafting a reconciliation bill aimed at diverting $200 billion toward war efforts and immigration enforcement (Anadolu Ajansı, 2026).
These funds are slated to come from further reductions to federal health programs. This follows the major healthcare legislation passed last summer, which already cut nearly $1 trillion from Medicaid and allowed Affordable Care Act (ACA) tax credits to expire, causing premiums to double for millions (Democrats.org, 2026).
Why is it so easy to target already disenfranchised populations? Why is the first response always to take from those who need the most, all to fund a war without Congressional approval? It is lazy and cruel.
Supplement 4/3/2026 2027 I Didn’t Know It Could Get Worse: Here’s 2027’s Budget Request
The 2027 budget proposal released on Friday, April 3, 2026, outlines a massive shift in federal spending, clearly angled at bolstering the military at the expense of the people. President Trump is requesting $1.5 trillion for the military—a 42% increase—to fund “Operation Epic Fury” in Iran and the “Golden Dome” missile defense system. To pay for this, the administration is proposing $73 billion in cuts to non-defense programs (Office of Management and Budget, 2026).
The following is an itemized breakdown of the proposed cuts to—and eliminations of—various federal programs:
Healthcare and Research
- $5 billion: Public health programs, mental health services, and disease prevention.
- $5 billion: Medical research at the National Institutes of Health (NIH).
- $4.3 billion: Global health and disease prevention programs.
- $129 million: Healthcare quality and safety research.
Education and Youth Services
- $8.5 billion: Funding for public schools.
- $2.7 billion: College access and higher education support.
- $1.5 billion: Vocational training and adult education (Fully eliminated).
- $819 million: Care and shelter for migrant children.
- $143 million: STEM education programs.
Housing and Infrastructure
- $15.2 billion: Roads, bridges, and infrastructure projects.
- $3.3 billion: Community development block grants for local neighborhoods (Fully eliminated).
- $2.2 billion: Broadband and internet access programs.
- $1.3 billion: Affordable housing construction grants (Fully eliminated).
- $659 million: Community building grants.
- $529 million: Housing assistance for people living with HIV/AIDS (Fully eliminated).
- $486 million: Grants for public transit projects.
- $393 million: Programs to reduce homelessness.
Environmental and Energy Programs
- $4.2 billion: Electric vehicle charging infrastructure.
- $4 billion: Help paying home heating and cooling bills for low-income families (LIHEAP) (Fully eliminated).
- $2.5 billion: Clean drinking water and wastewater infrastructure funds.
- $1.6 billion: Weather forecasting, fisheries, and coastal protection (NOAA).
- $1.1 billion: Home energy efficiency and clean energy programs (Fully eliminated).
- $1 billion: EPA grants to states for environmental protection.
- $386 million: Environmental cleanup programs.
- $150 million: Cutting-edge clean energy research.
- $100 million: Air pollution monitoring and reduction programs (Fully eliminated).
- $90 million: Grants to reduce diesel pollution (Fully eliminated).
Small Business and Agriculture
- $510 million: Grants for farmers and agricultural research.
- $309 million: Small business development and entrepreneurship programs.
- $170 million: Small Business Administration operations.
- $158 million: Loans for small businesses.
- $82 million: Loans for rural small businesses (Fully eliminated).
- $61 million: Support for farmers and food markets (Fully eliminated).
- $47 million: Support for minority-owned businesses (Fully eliminated).
Science and Technology
- $3.4 billion: NASA space and earth science research.
- $1.1 billion: International Space Station operations.
- $1.1 billion: Scientific research funding.
- $993 million: Scientific research and technology standards.
- $297 million: NASA technology innovation programs.
Public Safety and International Aid
- $2 billion: International humanitarian aid.
- $1.6 billion: Job training for at-risk youth (Fully eliminated).
- $1.2 billion: Food aid for hungry families abroad (Fully eliminated).
- $775 million: Local anti-poverty programs (Fully eliminated).
- $768 million: Refugee resettlement assistance.
- $707 million: Cybersecurity protection for critical infrastructure.
- $395 million: Jobs program for low-income seniors (Fully eliminated).
- $356 million: Emergency preparedness and disaster response.
- $234 million: Worker safety and labor protection programs.
- $101 million: Enforcement of equal pay and workplace anti-discrimination laws.
- $52 million: Airport and transportation security.
- $20 million: Civil rights mediation and legal access programs (Fully eliminated).
It is worth noting that this is currently an ask from the President. For the fiscal budget to be approved, it must survive Congressional and Senate votes, likely facing many revisions and concessions throughout the process. Ultimately Congress “holds the purse” and is responsible for the federal budget. That being said, if last year showed us anything, it’s that Republicans will tow the party line and vote this atrocious budget in if they still hold the majority.
The proposed 2027 budget represents a further dismantling of the programs that allow disabled and marginalized individuals to live equitably. By completely eliminating Community Development Block Grants ($3.3 billion) and Affordable Housing Construction Grants ($1.3 billion), the administration strikes at the foundation of independent living (Office of Management and Budget, 2026). This will force disabled individuals into institutional settings or homelessness . Furthermore, the $5 billion cut to public health and mental health services, alongside the total removal of vocational training ($1.5 billion) and senior job programs ($395 million), effectively locks marginalized communities out of the workforce and strips away the specialized care required for daily survival (Office of Management and Budget, 2026).
Tinfoil hat time: These cuts are intentional, war or not. The US has fought countless wars without defunding everything. These cuts are this administration’s way of further eliminating programs that they don’t agree with, discarding initiatives that prevent strip-mining what’s left of the US. This is blatantly using military conflict to swap in another DOGE-esque approach to the bureaucracy, which was an abject failure.
Supplement 4/6/2026 Expanding the Surveillance State: No More Separation of Church and State
Trump’s 2027 budget would aggressively expand the NSPM-7 and the Joint Mission Center, blurring the divide even more for the separation of religion and politics.
The NSPM-7 Joint Mission Center is a multi-agency initiative established by the FBI between late 2025 and early 2026 to execute the mandates of National Security Presidential Memorandum 7 (NSPM-7). According to the FY 2027 Budget Request, this center integrates personnel from 10 federal agencies to “proactively identify” and disrupt domestic networks allegedly engaged in “organized political violence” (Office of Management and Budget, 2026). On the surface, some of these seem reasonable, but they are kept vague and layered deliberately to allow government agencies to grasp at more power.
The memorandum explicitly lists the ideological common threads that the Trump administration believes equate to domestic terrorism:
- Anti-Americanism, anti-capitalism, and anti-Christianity (so no free-thinking or straying from the path? Got it)
- Support for the overthrow of the U.S. Government (I guess a January 6th insurrection doesn’t count?)
- Extremism on migration, race, and gender (think Minneapolis protests during ICE raids or the organizing for the “No Kings” rallies)
- Hostility toward traditional American views on family, religion, and morality (what does this even mean? America is a melting pot. We don’t [or shouldn’t] recognize a single race, ethnicity, or faith)
To me, this reads like simply having a different opinion than this administration makes you an enemy of the state. Civil rights advocates warn that these categories are broad by design, potentially allowing the government to target labor organizers, racial justice activists, and nonprofit donors under the guise of national security (Charity & Security Network, 2025; Interfaith Alliance, 2025). NSPM-7 even directs the IRS to investigate the tax-exempt status of organizations that may indirectly finance these ideologies, a modern-day weaponization of federal law enforcement to suppress political dissent (Baker McKenzie, 2025).
This positions the executive branch to operate in direct contradiction to how our Framers built the Constitution. By labeling “anti-Christianity” as a potential marker for terrorism, the administration ignores the warnings of Thomas Jefferson and James Madison, who established the separation of church and state specifically to prevent this EXACT kind of government overreach. Jefferson famously advocated for a “wall of separation” to protect the private conscience from state interference, while Madison warned that allowing the government to become an arbiter of religious orthodoxy would inevitably lead to ecclesiastical tyranny. Using federal law enforcement to monitor citizens based on their alignment with specific religious or moral traditions fundamentally erodes these constitutional protections, trading individual liberty for a state-enforced religious and political standard.
The surveillance state needs to shrink, not grow. Unfortunately, that is not likely to happen anytime soon, as both Republicans and Democrats historically inflate the funding for these agencies. Coupled with advancements in invasive AI technology and the federal contracts with companies like Anthropic and OpenAI, we are likely to experience widespread violations of privacy. Our country’s founders would be so disappointed in us.
References
AAPD. (2025, April 22). Explaining ED: What Trump’s recent executive order means for disabled students. American Association of People with Disabilities. https://www.aapd.com/explaining-ed-recent-actions
AARP. (2025). Government shutdown could disrupt SNAP benefits for older adults. https://www.aarp.org/advocacy/government-shutdown-snap-benefits/
ABC News. (2025). States start halting SNAP benefits amid shutdown. https://abcnews.go.com/Politics/states-start-halting-snap-benefits-amid-shutdown/story?id=126716354
American Association of People with Disabilities. (2025). Explainer: What the government shutdown means for SNAP, WIC, and disability programs. https://www.aapd.com/explainer-what-the-government-shutdown-means-for-snap-wic-and-disability-programs/
American Association of People with Disabilities. (2025). HHS Draft Budget Explainer. https://www.aapd.com/hhs-draft-budget-explainer
Anadolu Ajansı. (2026, March 30). US Republicans consider health care cuts to fund Iran war, Axios reports. https://www.aa.com.tr/en/americas/us-republicans-consider-health-care-cuts-to-fund-iran-war-axios-reports/3885415
Associated Press. (2025, May 12). House Republicans propose sweeping Medicaid cuts under budget bill. https://apnews.com/article/1e2b12a91a3d12ceb0420ce7053de58e
Atlanta News First. (2025). Metro Atlanta food banks continue helping families as government shutdown impacts SNAP benefits. https://www.atlantanewsfirst.com/2025/11/05/metro-atlanta-food-banks-continue-helping-families-government-shutdown-impacts-snap-benefits/
Baker McKenzie. (2025, October 2). North America: Federal strategy on domestic terrorism includes focus on nonprofit foundations, entities, and individuals. https://insightplus.bakermckenzie.com/bm/dispute-resolution/north-america-federal-strategy-on-domestic-terrorism-includes-focus-on-nonprofit-foundations-entities-and-individuals
Barron’s. (2025, May 12). GOP Medicaid overhaul would cut insurance for millions. https://www.barrons.com/articles/medicaid-cuts-news-gop-bill-86c9f139
Bazelon Center for Mental Health Law. (2026, March 23). Stop the “Civil Death” of our veterans: Oppose the Veterans Care Protection Act. [Social media post]. Instagram.
Britannica. (2026, March 17). 2026 Iran War | Explained, United States, Israel, Strait of Hormuz, Map, & Conflict. https://www.britannica.com/event/2026-Iran-War
Castillo, V., & Neas, K. (2025, April 18). The top 5 ways Project 2025 would hurt disabled people. Center for American Progress. https://www.americanprogress.org/article/the-top-5-ways-project-2025-would-hurt-disabled-people/
CBS News. (2025, July 1). Comparing Medicaid cuts in House and Senate versions of Trump’s Big Beautiful Bill. https://www.cbsnews.com/news/comparing-medicaid-cuts-house-senate-trump-big-beautiful-bill
CBS News. (2025). Government shutdown: SNAP benefits could be delayed if funding isn’t restored. https://www.cbsnews.com/news/government-shutdown-snap-benefits-delayed-usda/
CDMRP. (2025). FY25 Appropriations Summary. https://cdmrp.health.mil/pubs/press/2025/FY25_Appropriations.aspx
Centers for Medicare & Medicaid Services. (2024). CMS finalizes minimum staffing standards for long-term care facilities. https://www.cms.gov/newsroom/press-releases/cms-finalizes-minimum-staffing-standards-long-term-care-facilities
Charity & Security Network. (2025, October 2). Summary and Commentary: Presidential Memorandum on Countering Domestic Terrorism and Organized Political Violence. https://charityandsecurity.org/analysis/summary-and-commentary-presidential-memorandum-on-countering-domestic-terrorism-and-organized-political-violence/
Christopher & Dana Reeve Foundation. (2025). President’s budget eliminates funding for the Paralysis Resource Center – Act now. https://blog.christopherreeve.org/en/daily-dose/presidents-budget-eliminates-funding-for-the-paralysis-resource-center-act-now
Clarke, H. (2025, March 12). House passes bill that includes 57% budget cut to medical research programs. Urology Times. https://www.urologytimes.com/view/house-passes-bill-that-includes-57-budget-cut-to-medical-research-programs
Democrats.org. (2026, March 30). NEW: Trump and Republicans Want To Make Even More Cuts to Health Care To Pay for Their War of Choice With Iran. https://democrats.org/news/new-trump-and-republicans-want-to-make-even-more-cuts-to-health-care-to-pay-for-their-war-of-choice-with-iran/
Department of Veterans Affairs. (2026a, March 11). VA and DOJ partner to provide legal lifelines for vulnerable veterans. [Press release]. https://www.va.gov/opa/pressrel/
Department of Veterans Affairs. (2026b, March 25). Testimony before the House Committee on Veterans’ Affairs regarding the Veterans Care Protection Act.
DLA Piper. (2025, January 29). President Trump revokes federal diversity, equity, and inclusion policies. https://knowledge.dlapiper.com/dlapiperknowledge/globalemploymentlatestdevelopments/2025/president-trump-revokes-federal-diversity-equity-and-inclusion
Federal Register. (2025). Medicare and Medicaid programs; repeal of minimum staffing standards for long-term care facilities. https://www.federalregister.gov/documents/2025/12/03/2025-21792/medicare-and-medicaid-programs-repeal-of-minimum-staffing-standards-for-long-term-care-facilities
Foley & Lardner LLP. (2025, January 26). President Trump ends affirmative action requirements for federal contractors. https://www.foley.com/insights/publications/2025/01/president-trump-ends-affirmative-action-requirements-for-federal-contractors
Healthcare Dive. (2025). Trump administration repeals Biden-era nursing home staffing mandate. https://www.healthcaredive.com/news/trump-administration-repeals-biden-era-nursing-home-staffing-mandate/806879/
Inclusivity Consulting. (2025, January 24). Trump transgender executive order threatens people with disabilities. https://inclusivity.consulting/2025/01/24/trump-transgender-executive-order-threatens-people-with-disabilities
Interfaith Alliance. (2025, November 21). NSPM-7: Co-opting National Security to Suppress Dissent. https://www.interfaithalliance.org/post/nspm-7-co-opting-national-security-to-suppress-dissent
Kaiser, J., & Reardon, S. (2025). Biomedical research takes hits in U.S. budget deal. AAAS Articles DO Group. https://doi.org/10.1126/science.z10md5i
MarketWatch. (2025, June 30). Senate strikes key Medicaid cuts from reconciliation bill before passage. https://www.marketwatch.com/story/trump-medicaid-cuts-dealt-major-blow-in-senate-imperiling-tax-bill-5325d22a
National Disability Rights Network. (2026, March 26). Disabled veterans should not lose their rights because the system failed to support them. [Social media post]. Instagram.
New York Magazine. (2025, May 13). GOP’s stealth Medicaid cuts mean millions will lose coverage. https://nymag.com/intelligencer/article/gops-stealth-medicaid-cuts-mean-millions-will-lose-coverage.html
New York Post. (2025, May 12). Republicans unveil spending cuts for Trump’s “big, beautiful” budget bill. https://nypost.com/2025/05/12/us-news/republicans-unveil-900b-in-spending-cuts-for-trumps-big-beautiful-bill
Office of Management and Budget. (2026, April). Budget of the U.S. Government, Fiscal Year 2027. U.S. Government Publishing Office. https://www.whitehouse.gov/wp-content/uploads/2026/04/budget_fy2027.pdf
Politico. (2025, June 28). Fresh megabill text overnight: what’s in and what’s out. https://www.politico.com/news/2025/06/28/megabill-reconciliation-parliamentarian-00431082
Politico. (2025). 25 states sue Trump administration over withholding food-aid funding. https://www.politico.com/news/2025/10/28/25-states-sue-trump-snap-food-aid-shutdown-00625431
Reeve Foundation. (2026, February 4). This Win is Thanks to You, Our Advocates: Spending Bill Passes with Full Support for NPRC – Christopher & Dana Reeve Foundation. Christopher & Dana Reeve Foundation. https://www.christopherreeve.org/get-involved/advocate-for-change/paralysis-resource-center-funding-updates/this-win-is-thanks-to-you-our-advocates-spending-bill-passes-with-full-support-for-nprc/
Reuters. (2025, May 2). Trump budget proposes drastic cuts to U.S. scientific research. https://www.reuters.com/business/healthcare-pharmaceuticals/trump-budget-proposes-drastic-cuts-us-scientific-research-2025-05-02
Reuters. (2025). USDA memo says it will not use emergency funds for November food benefits. https://www.reuters.com/world/us/usda-memo-says-it-will-not-use-emergency-funds-november-food-benefits-2025-10-24/
Rodreick, M. (2025). $40M in SCI Research Just Got Eliminated – Here’s What You Can Do. U2fp.org. https://u2fp.org/get-educated/article/40m-in-sci-research-just-got-eliminated—heres-what-you-can-do.html
Steenhuysen, J., & Borter, G. (2025, May 2). Trump budget proposes drastic cuts to US scientific research. Reuters. https://www.reuters.com/business/healthcare-pharmaceuticals/trump-budget-proposes-drastic-cuts-us-scientific-research-2025-05-02/
Stoffer, J. (2026). SCIRP Funding Restored! U2fp.org. https://u2fp.org/get-educated/article/scirp-funding-restored.html
TASH. (2025, April 30). TASH statement on proposed changes to the U.S. Department of Health and Human Services. https://tash.org/tash-statement-on-proposed-changes-to-the-us-department-of-health-and-human-services/
The Arc. (2025). Federal government shutdown: What people with disabilities should know. https://thearc.org/blog/federal-government-shutdown-what-people-with-disabilities-should-know/
The Daily Beast. (2025, July 1). GOP Senator blasts Trump’s bill moments after voting for it. https://www.thedailybeast.com/gop-senator-blasts-trumps-bill-moments-after-voting-for-it
The Washington Post. (2025, May 22). Trump’s budget bill passes House as Senate prepares to revise it. https://www.washingtonpost.com/politics/2025/05/22/trump-budget-bill-congress/
Thompson, C. (2025, April 25). Mental health services lose $1 billion in new budget plan. Associated Press. https://apnews.com/article/00bec2d96371f023ac56fe3f32f3e92f
TypeWell. (2025, February 2). Accessibility at risk: The unfolding impact of 2025 policy shifts on disability services in the United States. https://typewell.com/accessibility-at-risk-the-unfolding-impact-of-2025-policy-shifts-on-disability-services-in-the-united-states
Ujifusa, A. (2025, March 20). Civil rights, research, and more: What’s hit hardest by massive Education Department cuts. Education Week. https://www.edweek.org/policy-politics/civil-rights-research-and-more-whats-hit-hardest-by-massive-ed-dept-cuts/2025/03
Unite 2 Fight Paralysis. (2025). Save SCIRP: Take Action to Restore SCI Research Funding. U2FP. Retrieved April 27, 2025, from https://u2fp.org/get-involved/save-scirp.html
U.S. Department of Agriculture. (2025). Supplemental Nutrition Assistance Program (SNAP) Data and Statistics. https://www.fns.usda.gov/snap
U.S. Department of Defense, Congressionally Directed Medical Research Programs. (n.d.). Spinal Cord Injury Research Program (SCIRP). Retrieved April 27, 2025, from https://cdmrp.health.mil/scirp/default
U.S. Department of Health & Human Services, Office of Inspector General. (2022). Nursing home staffing shortages and resident harm. https://oig.hhs.gov/reports-and-publications/workplan/summary/wp-summary-0000566.asp
Wallace, G. (2025, May 2). How Trump’s budget proposals could affect lower-income Americans. Axios. https://www.axios.com/2025/05/03/trump-budget-low-income
ADA Who? Challenges to Disability Rights

This section of my advocacy blog tracks major legal and judicial challenges involving disability rights and disability related legislation. It highlights court cases, regulatory disputes, and policy challenges that shape how laws like the Americans with Disabilities Act and the Individuals with Disabilities Education Act are interpreted and enforced.
Supplements in this section break down complex legal decisions in clear terms, explaining what the cases involve, what rights are at stake, and how rulings may impact people with disabilities. The goal is to make the legal landscape more understandable while documenting how courts and policymakers continue to define the real world protections behind disability civil rights laws.
Supplement 2/10/2025 Protect Section 504: Texas v. Kennedy is an Existential Threat
One Lawsuit Away From Rolling Back 50 Years of Progress
A coalition of 17 state attorneys general (Feb 2025) has filed a lawsuit challenging the constitutionality of Section 504 of the Rehabilitation Act of 1973. The lawsuit seeks to overturn the Final Rule implemented in the 2024 update to Section 504, which went into effect in May 2024 (U.S. Department of Health and Human Services [HHS], 2024).
Beyond targeting the update, the states involved are pushing for a broader ruling to declare Section 504 unconstitutional in its entirety—a move that could have devastating consequences for disability rights and anti-discrimination protections nationwide (National Council on Disability [NCD], 2024).
The potential implications of Texas v. Becerra are alarming for anyone concerned about disability rights and anti-discrimination protections.
This legal attack, framed around the language of Section 504 of the Rehabilitation Act, essentially argues that the entire legislation is unconstitutional. The lawsuit specifically targets access to services and protections for individuals with diagnosed gender dysphoria, claiming that this provision invalidates Section 504 as a whole (Levine, 2024).
Regardless of one’s stance on gender identity, anyone with empathy and compassion should recognize how dangerous this precedent is.
This case represents a serious existential threat to the rights of ALL people with disabilities, undermining the very foundation of federal anti-discrimination laws. It could even pave the way for legal challenges to the Americans with Disabilities Act (ADA)—a terrifying prospect for millions.

Supplement 4/25/2025 Case Advances (and changes name)
The lawsuit originally filed as Texas v. Becerra—now Texas v. Kennedy—has seen important changes, but the stakes for the disability community remain high. Here’s what you need to know.
On April 11, 2025, the U.S. District Court for the Northern District of Texas paused the case, with a review scheduled for July 2025 (American Council of the Blind, 2025). The 17 plaintiff states have narrowed their challenge: instead of trying to strike down Section 504 completely, they are now attacking how it’s applied—especially regarding protections for people with gender dysphoria and requirements for community integration under Olmstead (Disability Rights Education and Defense Fund, 2025).
They argue Section 504 should only apply to programs directly funded by the Rehabilitation Act, not broader services like health care, education, or housing.
Even with a narrower focus, this lawsuit could undermine critical protections for disabled people—especially recent updates that strengthened rights in health care and community living (The Arc, 2025). Disability advocates warn that a bad outcome could roll back decades of hard-won rights.
This case is a clear reminder: advocacy works. The fact that the lawsuit has already been limited shows that public pressure, legal action, and community organizing make a difference. By speaking out, we show courts, lawmakers, and the public that disability rights cannot be quietly dismantled.
Our voices helped shape Section 504 decades ago—and they are just as powerful today. Staying informed, sharing stories, and raising awareness are all forms of advocacy in action.
The future of Section 504 protections depends not just on the courts, but on all of us.
Supplement 1/29/2026 Case Continues to Morph & It’s BAD
Since my original post, the lawsuit targeting Section 504 has escalated in troubling ways. On January 23, 2026, Texas and eight other states (AK, FL, KS, LA, MO, MT, ND) renewed their legal challenge to Section 504 of the Rehabilitation Act and the federal integration mandate. These states are asking the courts to block enforcement of updated rules issued by the U.S. Department of Health and Human Services.
At stake is the right of disabled people to receive services in the most integrated setting appropriate rather than being forced into institutions. This right has been upheld for decades, including by the Supreme Court in Olmstead v. L.C., and it is a cornerstone of disability civil rights. The updated HHS rule also makes clear that placing disabled people at serious risk of institutionalization can itself violate Section 504.
If this challenge succeeds, it will become much harder for disabled people to enforce their right to live in the community. More people could be pushed into institutional settings even when community living is possible and preferred. That would be a major step backward.
This lawsuit is a revised version of the earlier case. While a bulk of the original states previously dropped their claim that Section 504 itself was unconstitutional after public backlash, they continue to attack the updated regulations. The states here are now asking the court to block the entire rule and prevent HHS from stopping policies that place disabled people at serious risk of institutionalization.
Let me get this straight: the same people that defunded (see above section about the federal budget) the already struggling facilities and cut funding and access to in-home healthcare services in the recent budget reconciliation bill now want to remove the legislation keeping people out of said facilities? What are the options at that point? Death?
The implications here are so far beyond the pale. They affect where disabled people live, whether they can remain in their homes, and whether decades of hard won civil rights mean anything. This case is ongoing, and it deserves close attention.
For a more in-depth look into this case, I urge you to follow DREDF and their advocacy efforts.
Supplement 3/15/2026 Rights on Flights: Airlines For America v. US Department of Transportation
American Airlines, Delta, Jet Blue, Southwest and United are currently suing to overturn a rule set by the Department of Transportation requiring them to improve services and protections for disabled individuals, with a focus on wheelchair users.
This entire system is already so flawed for disabled travelers. So many improvements are necessary, yet the airlines only see green.
Pete Buttigieg working as the Transportation Secretary established rules requiring airlines to adhere to stricter standards in 2024. The new rules set standards for prompt, safe, and dignified assistance and an expanded training program for airline employees and contractors who assist passengers with disabilities, including handling their wheelchairs.
Violations and mishandling of mobility aids were automatically marked as a violation of the Air Carrier Access Act (ACAA) and punishment meant steeper fines. These airlines are all being represented by Airlines For America (A4A), a lobbying group, which is looking to reverse the rule set by the DOT.
Supplement 3/21/2025 Outrage and Legal Response
In response to this lawsuit, Paralyzed Veterans of America (PVA) filed a motion to intervene, citing the rule’s importance for their members and its potential to set a historic precedent for accessible air travel.
This rule is the most significant regulatory update for wheelchair users since 2008 and reflects growing demand for safer, more dignified air travel experiences for people with disabilities. While the DOT has already imposed steep penalties on airlines for past violations, this policy aims to proactively prevent harm. The court’s decision—expected later this year—will determine whether these protections are upheld or delayed. Disability advocates hope the rule will mark a new standard in accessible travel, while airlines seek to limit regulatory burden.
Supplement 9/29/2025 DOT Backs Off: Airlines Off the Hook for Damaged Wheelchairs
There’s nothing quite like ending Spinal Cord Injury Awareness Month (September) with yet another setback for disability rights in America.
The U.S. Department of Transportation (DOT) has announced it will not enforce major parts of its own new rule meant to hold airlines accountable for breaking, losing, or mishandling passengers’ wheelchairs (Dinsmore, 2025). This rule, which was finalized in December 2024 under Biden’s administration and celebrated as a long-overdue protection, included requirements for training, reimbursements, and a presumption of liability when mobility aids are damaged (Reuters, 2025). But now, under mounting pressure and a lawsuit from Airlines for America, Trump’s DOT is pumping the brakes. The DOT is also scrapping the rule that would have required airlines to give written notice of passenger rights at check-in (Shepardson, 2025). Why does it always come down to appeasing CEO’s? Why are we moving the needle backwards?
This moment calls for action. Every broken mobility aid is a broken promise. We deserve more than symbolic protections. We deserve rules with teeth.
Supplement 4/28/2025 In Bad Faith: A.J.T v. Osseo Area Schools

Supreme Court to Decide If Disability Rights Really Matter
This week (4/28/2025), the Supreme Court will hear arguments in A.J.T. v. Osseo Area Schools, a case that could severely weaken protections under the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act (SCOTUSblog, 2025). If you care about accessibility and basic human dignity, this case demands your attention.
At the heart of this case is a critical question:
Should disabled individuals be required to prove that discrimination was carried out “in bad faith” or due to “gross misjudgment” in order to defend their rights (National Disability Rights Network, 2025)?
In plain English, if a school, business, or public building fails to provide basic accommodations such as ramps, interpreters, or accessible restrooms, under this proposed standard, disabled individuals could lose their right to seek justice unless they could demonstrate intentional cruelty or recklessness.
Intent would be prioritized over impact.
Consider the implications:
- A restaurant without a wheelchair ramp? “They did not mean to exclude you.”
- A school refusing to provide a sign language interpreter or support an Individualized Education Program (IEP)? “Maybe they simply did not think it was necessary.”
Without bad intent, there could be no accountability.
This case began as a relatively narrow dispute involving accommodations for a disabled student in K-12 education. However, recent filings suggest a broader aim. The interpretation may be expanded to apply across the board, affecting every disabled person who relies on ADA or Section 504 protections (Bazelon Center for Mental Health Law, 2025).
This shift would dramatically increase the burden on disabled Americans to enforce their basic civil rights. With an already sluggish Department of Justice oversight process, many disabled individuals could be left without meaningful recourse (Disability Rights Education and Defense Fund, 2025).
Rights are meaningless if people are forced to beg for them.
Rights are meaningless if individuals must prove someone meant to hurt them.
Accessibility is not a favor. It is a legal and moral obligation. It is not something that only matters when “malicious intent” can be proven. This case threatens to reverse decades of hard-won progress and would make it much easier for public institutions and businesses to ignore accessibility standards without consequence.
Watch this case closely. Speak out. Organize. Our rights are not guaranteed unless we fight for them.
Supplement 5/1/2025 Court Arguments: Justice Prevails
Update: What We Learned From Supreme Court Arguments in A.J.T. v. Osseo
Oral arguments just wrapped, and here is the bottom line: the justices did not seem fully convinced that disabled students should have to prove “bad faith” in order to seek justice.
Justice Amy Coney Barrett raised a critical question. She asked why students with disabilities should face a higher burden of proof than people in other civil rights cases. Justice Neil Gorsuch also challenged the school district’s legal team, especially when they accused the student’s family of lying. He reminded them that such an accusation is very serious and not appropriate in that setting (Singman, 2025; Marimow, 2025).
The school district, on the other hand, continues to defend its position. Their attorney argued that lowering the legal standard could overwhelm schools with lawsuits and put federal funding at risk. But that argument misses the core issue. The ADA and Section 504 exist to protect students when schools fall short, whether the harm was intentional or not.
Now the case moves into deliberation. A ruling is expected by summer. The stakes remain high. This decision could either preserve or seriously weaken the civil rights protections that disabled people depend on.
I will be monitoring this the best I can and will update accordingly. Stay vigilant and loud.
Supplement 6/12/2025 Case Closed: Civil Rights Hold True
Supreme Court Rules in Favor of Disability Rights in A.J.T. v. Osseo
In a unanimous 9–0 decision issued on June 12, 2025, the U.S. Supreme Court ruled in favor of the student in A.J.T. v. Osseo Area Schools, reinforcing key protections under the Americans with Disabilities Act (ADA) and Section 504 of the Rehabilitation Act.
The Court rejected the idea that students with disabilities must prove “bad faith” or “gross misjudgment” in order to seek compensatory damages when their rights are violated. Instead, the justices reaffirmed that the standard of “deliberate indifference” applies, just as it does in other ADA cases (Supreme Court of the United States, 2025). This decision levels the legal playing field for students, who will no longer face higher burdens of proof than other individuals protected under disability law.
Justice Sotomayor, writing for the majority, emphasized that requiring proof of intent in school settings would conflict with how courts interpret similar claims in other areas. The ruling vacates the earlier Eighth Circuit decision and sends the case back for further proceedings under the correct legal standard (Ogletree Deakins, 2025).
This outcome marks a major win for students with disabilities and their families. It ensures that civil rights are not dependent on whether discrimination was intentional, but on whether it occurred at all. Advocacy groups are celebrating the decision as a step toward stronger enforcement of equal access in education.
Supplement 5/16/2025 New Construction Regulations for the Department of Energy
On May 16, 2025, the U.S. Department of Energy (DOE) issued a rule removing specific accessibility requirements for new construction projects that receive federal funding. DOE stated this is part of an effort to reduce regulatory overlap, claiming that existing federal disability laws already provide enough coverage. However, for the disability community, this change raises serious concerns about equal access in the spaces funded by taxpayer dollars.
What’s Changing?
DOE-funded construction projects will no longer have to follow DOE-specific guidelines for accessibility. Instead, they will rely on broader laws like the Americans with Disabilities Act (ADA). These laws are important, but they do not always address the unique needs of federally assisted programs or guarantee consistent enforcement.
Why This Matters
- Less Oversight: Without DOE-specific rules, new buildings may not meet accessibility needs, especially in specialized environments like research labs or energy training centers.
- More Work for Advocates: Disabled individuals and community organizations will need to monitor more closely to ensure inclusion is not overlooked.
- Worrying Trend: Other agencies may interpret this move as a signal to cut back on their own disability protections.
- Confusing Standards: Organizations that receive DOE funds might be unsure which guidelines to follow, leading to inconsistent results.
- Potential for Exclusion: Disabled people may encounter new physical and systemic barriers in programs tied to science, energy, or education.
Now more than ever, we must stay alert. Removing these requirements may seem minor on paper, but the real-world consequences affect who gets to participate, who feels welcome, and who gets left out.
Read the official document here:
DOE-HQ-2025-0015-0001 on Regulations.gov
Supplement 2/23/2026 Department of Energy Updates: Accessibility Rule Standoff
If you have been following coverage of the Department of Energy’s (DOE) attempt to strip away accessibility mandates, there has been major, yet discreet development: the fight is still on. While the agency intended to quietly rescind these protections months ago, a massive wave of advocacy has forced a series of delays.
As of today, the proposed rescission of 10 C.F.R. § 1040.73 has not gone into effect. This rule currently requires any building receiving DOE federal funds to be designed and constructed according to the Uniform Federal Accessibility Standards (UFAS).
The DOE initially attempted to bypass the standard legislative process using a “direct final rule,” pretending the change was “non-controversial”. They were dead wrong (but they already knew that). Following over 20,000 adverse public comments, the implementation date has been pushed back three times. The new deadline for action is March 9, 2026 (Federal Register, 2025b).
If the DOE succeeds in March, buildings like research labs, community energy centers, and even federally funded EV charging stations would no longer have a specific “safe harbor” standard for physical accessibility. Critics, including the National Council on Disability (NCD), warn that this creates a “regulatory vacuum” that makes it harder for people with disabilities to hold federally funded projects accountable (NCD, 2025).
What’s Next?
The DOE is currently under pressure from the Department of Justice to ensure any changes comply with Executive Order 12250, which coordinates nondiscrimination laws across the government (Federal Register, 2025b). That’s right, the same DOJ aiding the Trump administrations push against DEIA policy and legislation.
I am watching the March 9 deadline closely. If the DOE does not withdraw the rule entirely by then, immediate legal challenges from disability rights groups to prevent the rescission from ever becoming law are likely. I will try to update accordingly.
Supplement 3/6/2026 Access in Limbo: DOE Delays Construction Rule for Fourth Time
On March 6, 2026, the Department of Energy (DOE) officially delayed the effective date of the final rule titled “Rescinding New Construction Requirements Related to Nondiscrimination in Federally Assisted Programs or Activities,” moving the implementation deadline from March 9 to July 6, 2026 (Rescinding New Construction Requirements, 2026). This administrative pause, published in the Federal Register at 91 FR 10954, marks the fourth such delay since the rescission was first proposed in May 2025 and follows directives from the Department of Justice to align with Executive Order 14281, “Restoring Equality of Opportunity and Meritocracy” (Rescinding New Construction Requirements, 2026). While the Department maintains that specific construction standards like 10 CFR 1040.73 are redundant and burdensome, the decision to push the date back into the summer leaves existing accessibility requirements for DOE-funded projects in place for now. This extension provides a temporary reprieve for advocates who argue that removing these objective design standards would create significant physical barriers and legal uncertainty for the disability community (National Education Association, 2025). I will do my best to keep an eye on the new July 6 deadline.
Supplement 8/22/2025 Voting Barriers Directly Contradict the Constitution
Eliminating Mail-in Voting and Its Impact on the Disability Community
President Trump announced plans to sign an executive order banning mail-in ballots and voting machines before the 2026 midterms. The problem is that elections are run by the states, not the president, and federal overreach will face immediate legal challenges (AP News, 2025; Roll Call, 2025).
Mail-in voting is not just convenient, it is essential. People with disabilities, chronic illnesses, or mobility barriers rely on it to participate safely and equally in elections. Caregivers also depend on this option to support those who cannot easily get to a polling place (Time, 2025).
Eliminating mail-in voting would strip away one of the most accessible options available. Even alternatives like drop boxes or curbside voting are inconsistent and often fail to meet ADA standards (Washington Post, 2025). This proposal would make civic participation harder, not safer.
Accessible voting is not partisan. It is a civil right. Rolling it back would silence millions, especially disabled Americans, and weaken the foundations of democracy.
Supplement 2/20/2026 SAVE Act and the 24th Amendment
The GOP is now pushing the SAVE Act (Safeguard American Voter Eligibility) through Congress and the Senate. It is being framed as a way to stop widespread voter fraud and non-citizen voting. Sounds reasonable on the surface. The problem is that this bill is aimed at a crisis that does not statistically exist. Federal law already prohibits non-citizens from voting, and documented cases are exceedingly rare.
What the SAVE Act would actually do is require hard-to-obtain proof of citizenship to register, shifting the burden onto lawful voters. Passports, certified birth certificates, and other official documents are not free or easily accessible for everyone. When the right to vote hinges on paying for paperwork, it starts functioning like a poll tax, which directly contradicts the 24th Amendment’s prohibition on financial barriers to voting. Framed as election security, the Act risks disenfranchising low-income, disabled, elderly, and rural Americans by turning a constitutional right into a bureaucratic obstacle course in response to what the data consistently shows is a non-issue. And if I am being honest, the political timing feels less like policy and more like damage control ahead of the midterms.
Supplement 4/21/2026 SAVE Act Fails in the Senate
Following its passage in the House this February, the SAVE Act has officially failed to clear the Senate. The legislative session ended without the bill reaching the necessary threshold for advancement, effectively halting the GOP-led effort to implement new federal proof-of-citizenship requirements. This failure to progress underscores a deep partisan divide regarding the trade-off between adding voting restrictions and the risk of suppressing legitimate eligible voters (Bedekovics & Bryant, 2025). While proponents framed the Act as a safeguard for election integrity, opponents argued that the administrative hurdles it proposed would create significant barriers for millions of Americans.
There is research across multiple decades that demonstrates substantiated cases of voter fraud are exceedingly rare, with incident rates for voter impersonation often measured between 0.0003% and 0.0025% (Levitt, 2007). With negligible data like this, we have to recognize that there is a trade-off between added voting restrictions and suppressing the participation of legitimate eligible voters. The Brennan Center for Justice found that up to 11% of Americans lack the required identification for stricter voting rules, despite being completely legitimate voters (Brennan Center for Justice as cited by Evans & Michaud, 2025). Restrictions like these will disproportionately impact marginalized groups like the elderly, the disabled, the poor, and people of color. Any laws that require spending money, like purchasing ID, inherently mimic a poll tax, which was made unconstitutional by the Fourteenth Amendment (Evans & Michaud, 2025). Prioritizing a marginal security concern over the fundamental civil liberty of voting guaranteed by the Fourteenth Amendment would harm the Democratic process more than it would address the rare instances of fraud.
Ultimately, the Senate’s decision rested on the principle that the fundamental civil liberty of voting must be protected from bureaucratic obstacles that disproportionately impact others. The Senate’s rejection of the SAVE Act reflects a commitment to the idea that democratic participation is more vital than addressing statistically rare instances of fraud.
Supplement 3/24/2026 Key Legal Case: Watson v. Republican National Committee
It has never been clearer to me how hard the GOP is working to prevent losing power in the midterm elections—all at the expensive of our civil liberties.
The Republican National Committee is currently challenging mail-in ballot grace periods in the Supreme Court case Watson v. RNC. The core of the dispute involves a Mississippi law that allows ballots to be counted if they are postmarked by Election Day but arrive up to five days later (Sheehan, 2026). While these grace periods have existed in various forms for over a century, the RNC argues they conflict with federal statutes that establish a single, uniform Election Day (Democracy Docket, 2026).
For veterans and active-duty service members, these grace periods are often a necessity. Even I relied on a few separate allowances when I submitted absentee ballots to State and Federal elections in 2016 while stationed across the country. Military members who are overseas or out of state also frequently rely on international shipping, and mail handling by barracks “mail-rooms” (often a few soldiers who are actively separating from the military), which can add layers of unpredictability to the process. According to the Federal Voting Assistance Program (n.d.), transit times for military mail can vary significantly based on operational locations. If the Supreme Court strikes down these protections, it could invalidate the votes of thousands of service members whose ballots are delayed by the postal service through no fault of their own (Sheehan, 2026).
This legal challenge also creates significant hurdles for voters with disabilities. Many individuals in the disability community rely on mail-in voting because of transportation barriers or physical difficulties associated with standing in long lines at polling places, especially in the dead of winter. My experience with November voting in New Hampshire has been rough (to say the least). I have relied on mail-in voting in the last two Federal elections, and I have had access to this vehicle for balloting—as is my right under the Fourteenth Amendment’s Equal Protection Clause. Organizations such as Disability Rights Mississippi have noted that removing these deadlines creates a “hidden deadline” where voters with disabilities must finish their ballots much earlier than in-person voters to account for mail speed (Disability Rights Mississippi, 2024). If grace periods are eliminated, the window for successful voting narrows, adding a layer of stress and potential disenfranchisement for those who need extra time to receive, complete, and return their documents.
The potential ruling could affect 14 states that currently offer grace periods for all voters, representing nearly half of the voting-eligible population in the United States (National Conference of State Legislatures, 2024). If these laws are overturned, voters with disabilities and those in the military will need to return their ballots much earlier to ensure they arrive by a strict Election Day deadline. This shift emphasizes the need for expanded early voting options and more robust support for those who cannot easily access traditional polling sites.
Supplement 4/1/2026 Challenging the Constitution Again: Trump v. Barbara and the 14th Amendment
Goodness, I wish so badly for this to have been an April fools joke. Until further notice, April fools is canceled because nothing can be a bigger joke than our current government.
Before I dive into this case currently being argued in the Supreme Court, I want to state something about the Constitution that I wish more people understood. Liberties aren’t a gift of the government; in fact, they’re quite the opposite. We are born with an inalienable rights. The Constitution exists to ensure that the government can’t take these rights away. Putting it simply, no matter how the executive tries to paint it, the Constitution isn’t a permission slip for the people; it’s a leash for the government.
This simple fact is why it angers me to no end when I witness blatant government overreach and attacks to the Constitution. I recognize that if I start tracking every challenge that the executive branch creates to civil rights, this advocacy page will be completely saturated. I try to focus strictly on topics impacting the disability community, because this is a disability blog, but truthfully, I have become extremely disillusioned with government. It is hard to have faith in a system that continuously targets marginalized communities, especially being part of one. Writing helps me, and this landmark ruling deserves to be documented here. This supplement will track Trump v. Barbara as it moves through the Supreme Court.
Trump v. Barbara challenges an executive order ending birthright citizenship for children of undocumented parents. The administration argues that “jurisdiction” requires political allegiance, while critics like Sheehan (2025) point to the 1898 Wong Kim Ark precedent, which says birth on U.S. soil equals citizenship, period.
The Supreme Court is using judicial review to decide if this order violates the Constitution. By taking the case immediately via “certiorari before judgment,” the Court acknowledges that redefining who belongs in America is a high-stakes constitutional emergency.
A ruling for the administration would narrow the 14th Amendment and potentially create a permanent subclass of residents. Sheehan (2025) warns that using an executive order to bypass the formal amendment process undermines the democratic framework and the 5th Amendment’s promise of due process.
While I am certainly not a Supreme Court Justice tasked with interpreting the constitution, I do have this platform to voice my thoughts. Here they are:
This executive order is a calculated attempt to consolidate power by narrowing the American electorate to favor a specific political base. Rooted in racism and a profound contempt for marginalized groups, this policy treats citizenship as a revocable privilege rather than an inherent right. For the disability community, this precedent is a direct threat; if the state can strip away birthright protections, then what protections are there for anyone? This creates a dangerous path where the rights and essential services of ANY population can be discarded whenever they are deemed politically inconvenient or burdensome.
There is no longer a time to sit out on politics. This impacts all of us, whether we want to recognize that or not.
References
American Council of the Blind. (2025, April 12). Update on Texas v. Becerra case. https://www.acb.org/update-texas-v-becerra-case
AP News. (2025, August 21). Trump vows to change how elections are run. The US Constitution doesn’t give him that power. https://apnews.com/article/8be6dba80091fd7e6d8570814b34a7fe
Bazelon Center for Mental Health Law. (2025). Brief on A.J.T. v. Osseo Area Schools and its potential impact on ADA/504 enforcement. Retrieved from https://www.bazelon.org
Bedekovics, G., & Bryant, S. (2025). The SAVE Act: Overview and facts. Center for American Progress. https://www.americanprogress.org/wp-content/uploads/sites/2/2025/01/The-SAVE-Act-Overview-and-Facts-1.pdf
CBS News. (2025, February 20). Airlines look to remove consumer protections for travelers who use wheelchairs. https://www.cbsnews.com/news/airlines-disabled-passengers-wheelchairs/
Democracy Docket. (2026). Watson v. Republican National Committee. https://www.democracydocket.com/cases/mississippi-mail-in-ballot-receipt-deadline-challenge/
Dinsmore, J. (2025, September 30). U.S. passengers flying with wheelchairs will now have even less support against airlines. TravelHost. https://travelhost.com/airlines/usdot-wheelchair-law-changes
Disability Rights Education & Defense Fund. (2025). Action alert: DOE civil rights and Section 504. dredf.org
Disability Rights Education and Defense Fund. (2025, February 21). Texas v. Becerra case update. https://dredf.org/wp-content/uploads/2025/02/2025.02.21_Texas-v-Becerra_Case-Update.pdf
Disability Rights Education and Defense Fund. (2026, January 23). Texas and Eight Other States Renew Attack on Section 504 and the Right of Disabled People to Live in their Communities. https://dredf.org/texas-and-eight-other-states-renew-attack-on-section-504-and-the-right-of-disabled-people-to-live-in-their-communities
Disability Rights Education and Defense Fund. (2025). Understanding the threats to ADA protections: Upcoming Supreme Court decisions. Retrieved from https://dredf.org
Disability Rights Mississippi. (2024). Amicus curiae brief in support of appellees in RNC v. Wetzel.
Evans, J., & Michaud, K. (2025). Central ideas in American government (15th ed.). Soomo Learning. https://www.webtexts.com
Federal Register. (2025a, May 16). Rescinding new construction requirements related to nondiscrimination in federally assisted programs (Vol. 90, No. 95). Office of the Federal Register. www.federalregister.gov
Federal Register. (2025b, December 9). Rescinding new construction requirements related to nondiscrimination in federally assisted programs; Further delay of effective date (Vol. 90, No. 235). Office of the Federal Register. www.federalregister.gov
Federal Voting Assistance Program. (n.d.). Mail transmission times. https://www.fvap.gov/vao/shipping-mail
Fortune. (2025, February 21). Airlines sue Department of Transportation over rule protecting wheelchair users. https://fortune.com/2025/02/21/airlines-lawsuit-transportation-department-rule-wheelchair-user-protection/
Levine, M. (2024, March 27). States challenge updated disability protections in court. ABC News. https://abcnews.go.com/Politics/states-challenge-updated-disability-protections-court/story?id=108303402
Levitt, J. (2007). The truth about voter fraud. Brennan Center for Justice. https://www.brennancenter.org/sites/default/files/legacy/Democracy/The%20Truth%20About%20Voter%20Fraud.pdf
Marimow, A. E. (2025, April 28). Justices seem sympathetic to student in disability discrimination case. The Washington Post. https://www.washingtonpost.com/politics/2025/04/28/supreme-court-disability-osseo-schools-accomodations/
Mobility Management. (2025, February 20). Airlines sue over DOT rule strengthening protections for wheelchair riders. https://mobilitymgmt.com/airlines-sue-over-dot-rule-strengthening-protections-for-wheelchair-riders/
National Conference of State Legislatures. (2024). Table 11: Receipt and postmark deadlines for absentee/mail ballots. https://www.ncsl.org/elections-and-campaigns/table-11-receipt-and-postmark-deadlines-for-absentee-mail-ballots
National Council on Disability. (2025, June 13). NCD advises DOE on rulemaking impacting people with disabilities. www.ncd.gov
National Council on Disability. (2024, March 20). NCD condemns lawsuit challenging disability civil rights protections. https://www.ncd.gov/newsroom/2024/ncd-condemns-lawsuit-challenging-disability-civil-rights-protections
National Disability Rights Network. (2025). A.J.T. v. Osseo: Why this case matters for disability rights. Retrieved from https://www.ndrn.org
National Education Association. (2025, June 16). DOE-HQ-2025-0015; Rescinding new construction requirements related to nondiscrimination in federally assisted programs or activities. https://www.nea.org/advocating-for-change/action-center/letters-testimony/doe-hq-2025-0015-rescinding-new-construction-requirements-related-nondiscrimination-federally
Ogletree Deakins. (2025, June 12). Supreme Court rejects heightened standard for student disability cases. https://ogletree.com/insights-resources/blog-posts/supreme-court-rejects-heightened-standard-for-student-disability-cases
Rescinding New Construction Requirements Related to Nondiscrimination in Federally Assisted Programs or Activities, 91 Fed. Reg. 10954 (Mar. 6, 2026) (to be codified at 10 C.F.R. pt. 1040). https://www.govinfo.gov/app/details/FR-2026-03-06/2026-04455
Reuters. (2025, February 20). US airlines challenge Biden wheelchair passenger protection rule. https://www.reuters.com/business/aerospace-defense/us-airlines-challenge-biden-wheelchair-passenger-protection-rule-2025-02-20/
Roll Call. (2025, August 20). White House changes course after Trump vows executive order to end mail-in voting.https://rollcall.com/2025/08/20/white-house-changes-course-after-trump-vows-executive-order-to-end-mail-in-voting
SCOTUSblog. (2025). Case preview: A.J.T. v. Osseo Area Schools. Retrieved from https://www.scotusblog.com
Sheehan, B. (2025, January 28). Interviewing myself about birthright citizenship. OMG WTF Is the Constitution. https://bensheehan.substack.com/p/a-clear-explanation-of-birthright
Sheehan, B. (2026, March 24). The GOP is messing with vote-by-mail. Politics Made Easy. https://bensheehan.substack.com/p/republicans-are-messing-with-vote
Shepardson, D. (2025, September 29). US will not enforce Biden wheelchair passenger protection rule. Reuters. https://www.reuters.com/world/usdot-will-not-enforce-biden-wheelchair-passenger-protection-rule-2025-09-29/
Singman, B. (2025, April 29). Neil Gorsuch scolds Supreme Court litigator in rare, heated exchange: ‘I’m not finished’. New York Post. https://nypost.com/2025/04/29/media/neil-gorsuch-scolds-supreme-court-litigator-in-heated-exchange/
Supreme Court of the United States. (2025). A.J.T. v. Osseo Area Schools, Independent School District No. 279. https://www.scotusblog.com/cases/case-files/a-j-t-v-osseo-area-schools-independent-school-district-no-279/
The Arc. (2025). Texas v. Becerra threatens disability rights. https://thearc.org/resource/texas-v-becerra/
Time. (2025, August 21). Trump says only the U.S. votes by mail. Here are the facts. https://time.com/7310391/trump-mail-in-ballots-midterms-votes
United States v. Wong Kim Ark, 169 U.S. 649 (1898).
USA Today. (2025, February 19). Airlines challenge DOT’s rule protecting travelers with disabilities. https://www.usatoday.com/story/travel/airline-news/2025/02/19/airlines-challenge-dots-rule-travelers-disabilities/79115676007/
U.S. Department of Health and Human Services. (2024, April 26). HHS finalizes rule to strengthen protections against discrimination in health care. https://www.hhs.gov/about/news/2024/04/26/hhs-finalizes-rule-strengthen-protections-against-discrimination-health-care.html
U.S. Department of Transportation. (2024, December 12). Ensuring safe accommodations for air travelers with disabilities using wheelchairs [Final rule]. https://www.transportation.gov/sites/dot.gov/files/2024-12/Final%20Rule%20Ensuring%20Safe%20Accommodations%20for%20Air%20Travelers%20with%20Disabilities%20Using%20Wheelchairs.pdf
U.S. Department of Transportation. (2024, December 16). Secretary Buttigieg announces sweeping protections for airline passengers with disabilities. https://www.transportation.gov/briefing-room/secretary-buttigieg-announces-sweeping-protections-airline-passengers-disabilities
Washington Post. (2025, August 21). Everyone loses when the federal government runs elections.https://www.washingtonpost.com/opinions/2025/08/21/trump-mail-voting-executive-order
Wheelchair Travel. (2025, February 20). U.S. airlines sue to block disabled passenger protections and training requirements. https://wheelchairtravel.org/airlines-file-lawsuit-block-disabled-passenger-protections-training-requirements/
War on Medicine
“I’m not scared of a germ. I used to snort cocaine off of toilet seats.” – Robert F. Kennedy Jr. (as United States Secretary of Health and Human Services, Feb. 2026)
This section documents the growing effort to weaken science, research, and public expertise under the current administration. It examines policies, budget cuts, and political rhetoric that undermine scientific institutions, silence experts, and strip evidence based decision making out of public policy. From attacks on public health agencies to the erosion of research funding and the politicization of data, these posts track how the “dumbing down” of science threatens us all.
Supplement 4/16/2025 Waging War Against Neurodiversity
April 16, 2025, US Secretary of Health & Human Services RFK Jr. once again used his platform to spread dangerous misinformation, this time targeting the autistic community. In his speech, he leaned heavily on debunked claims linking vaccines to autism and described autism as a “modern epidemic” that must be reversed or prevented. This kind of language is not only scientifically baseless but also deeply dehumanizing.
Supplement 4/17/2025 Echoes of Eugenics
What RFK Jr. is doing is not new. His rhetoric closely mirrors eugenic ideals that have left a dark legacy in both American and global history. In the early 20th century, the United States saw a surge in pseudoscientific movements that aimed to “purify” the human race. These movements promoted the forced sterilization of disabled individuals under the belief that they posed a threat to society’s well-being and progress. California alone sterilized over 20,000 people who were labeled “unfit” to reproduce. Many of these individuals would now be recognized as autistic or neurodivergent, though the terminology did not exist at the time (Stern, 2005).
In Nazi Germany, this ideology took on its most horrifying form through the Aktion T4 program. The regime systematically murdered disabled people, beginning with children who were perceived as developmentally different (Friedlander, 1995). These atrocities were justified under the guise of medical science and public health.
The parallels are deeply troubling. While RFK Jr. may not be openly calling for sterilization or violence, his words contribute to a harmful narrative. He presents autism as something broken or unnatural. When public figures use language like this, they reinforce discrimination, ableism, and policies that devalue disabled lives.
Autistic people do not need to be cured. They need acceptance, access, support, and respect. The real threat is not autism, but the attitudes and misinformation that seek to erase autistic identities. We must remain vigilant. History has shown us where these ideas can lead. We cannot afford to repeat that path.
Supplement 4/22/2025 Autism Registry
As U.S. Secretary of Health and Human Services, Robert F. Kennedy Jr. is spearheading a proposal to create a national autism registry using Americans’ private health data, coordinated through the National Institutes of Health. The plan would aggregate information from federal and commercial sources, including genomic databases, insurance claims, pharmacies, lab results, and even wearable technology, to study supposed environmental causes of autism, with preliminary findings promised by September 2025 (CBS News, 2025; The Guardian, 2025). This sweeping data grab has immediately raised red flags, not just for its scale, but for what it signals: a government willing to treat deeply personal health information as fair game in the name of speculative research.
Legally, the proposal threatens long-standing privacy protections under HIPAA by relying on data use without clear, opt-in consent, potentially violating individuals’ rights to control their own medical information (CBS News, 2025). Ethically, it risks further stigmatizing autistic people by framing autism as an “epidemic” to be corrected rather than a valid neurotype, while eroding public trust through expanded medical surveillance (The Guardian, 2025). The danger here is not abstract. Just weeks ago, widespread panic followed news that 23andMe’s bankruptcy could lead to the sale of genetic data from over 15 million users, a concern many rightly found alarming (Bloomberg Law, 2025). So the question is unavoidable: if we recognize the threat when corporations auction off health data, why are we quieter when the government seeks access to it? Today it is autism. Tomorrow it could be anyone. If this feels wrong, it is because it undermines the very checks and balances meant to protect our most basic right to privacy.
Supplement 4/25/2025 Autism Registry Outrage Worked
The U.S. Department of Health and Human Services has now denied plans to create a national autism registry, walking back earlier statements by newly appointed NIH director Jay Bhattacharya, who suggested such a registry would use private health data to study environmental links to autism. An HHS spokesperson clarified to STAT News that no registry is being developed or planned, highlighting internal confusion that immediately raised alarm among privacy advocates and the autism community (Florko, 2025). The reaction was swift for good reason. The idea of a registry fueled fears about consent, data misuse, and the continued framing of autism as a problem to be tracked rather than a lived identity to be understood.
What stopped it was collective pushback. Disability and autism advocates, researchers, and families pushed back hard, forcing clarification and likely halting a deeply harmful proposal. This moment underscores why advocacy matters. Large-scale research cannot be done to disabled communities without consequences. When policy ignores lived experience, it creates harm instead of insight. Anger, in this case, wasn’t noise. It was a corrective force.
- Participation declines: Fear of surveillance or misuse of data discourages autistic people and families from engaging with healthcare and research systems.
- Research quality suffers: Lower participation skews data, increasing bias and weakening the validity of findings.
- Stigma deepens: Treating autism as something to be monitored or fixed reinforces harmful narratives instead of supporting neurodiversity (Florko, 2025).
Supplement 5/9/2025 Autism Registry is… back?
May 2025 has become a flashpoint for the autism and disability rights community following the announcement of a new HHS pilot initiative, under Secretary Robert F. Kennedy Jr., to analyze Medicaid and Medicare data for autism research. Framed as an effort to improve understanding of autism and chronic illness, the initiative is rolling out without meaningful transparency, consent, or community input, raising serious ethical red flags (NHPR, 2025). At best, this feels rushed. At worst, it risks turning deeply personal health data into a tool of surveillance, reinforcing long-standing fears that autistic people are being studied about, not listened to.
That concern is underscored by what happened next. Leading disability and autism organizations are convening an Autism Roundtable on May 12 to address access to services, looming funding cuts, and the need for inclusive, ethical research practices (AAPD, 2025), yet Secretary Kennedy, despite being invited, has not responded. Autism is not a data point, and autistic people are not research material to be mined without consent. When governments pursue top-down data collection without trust or engagement, people disengage from legitimate research, skewing data and producing bad policy built on bad science. I am not opposed to research. I am opposed to exploitation. Ethical research starts with respect, transparency, and listening to the people most affected, not quietly building databases about them and calling it progress.
Supplement 9/22/2025 An Unbelievably Stupid “Breakthrough”
Right on schedule, the administration met its September deadline by reviving yet another debunked narrative. President Donald Trump and HHS Secretary Robert F. Kennedy Jr. announced new actions implying a causal link between acetaminophen (Tylenol) use during pregnancy and autism, even suggesting pregnant people should limit its use at potential risk to their own health (HHS, 2025). The problem is simple: the science does not support this claim. Decades of high-quality research show no causal connection between prenatal acetaminophen use and autism, ADHD, or intellectual disability, and once family and sibling factors are accounted for, the supposed associations disappear (ACOG, 2025; Hornig et al., 2025).
The same announcement also highlighted leucovorin (folinic acid), a treatment that can help a very specific subgroup of autistic children with cerebral folate deficiency, not autism broadly. That nuance matters, and it was largely lost. The American College of Obstetricians and Gynecologists responded bluntly, reiterating that acetaminophen remains safe and trusted during pregnancy (ACOG, 2025). When political leaders blur correlation and causation, they fuel fear, undermine public trust, and risk real harm by discouraging the only safe pain and fever option many pregnant people have, a concern echoed widely across the medical community (Washington Post, 2025). Autism is not caused by Tylenol. Framing misinformation as a policy win stigmatizes families, distracts from real needs, and represents a serious step backward for evidence-based public health.
Supplement 4/27/2025 Head of United States Vaccine Policy is a Hack
Mark Geier, a long-discredited anti-vaccine figure who promoted false links between vaccines and autism while running clinics that pushed dangerous, unproven treatments, has no business shaping federal health policy. Geier has never held a valid medical license, his work has been widely condemned as unethical pseudoscience, and his theories were debunked years ago (Gorski, 2007). Yet he has now been appointed to a senior advisory role on vaccine policy and disability issues at the Department of Health and Human Services under Secretary Robert F. Kennedy Jr.. Senator Maggie Hassan rightly warned that elevating a “fraudster” like Mark Geier risks reviving long-settled conspiracy theories and undermining public trust (Hassan, 2025). Bringing Geier into HHS is an insult to science, medicine, and the disability community, and it deserves far more outrage than it has received.
The irony here is bewildering. President Trump has stacked his cabinet with completely unqualified and inept yes-men (and women), while claiming that DEI policy is diminishing merit. I’ve actually never even heard the man used the words in the acronym. I’m not entirely sure he knows that it stands for diversity, equity, and inclusion. You know, kinda like including his goons to rip apart every corner of the government.
Supplement 2/20/2026 WILD Statements from RFK Jr.
I’ll keep this one short and let you, my valued reader, do the free thinking. Robert F. Kennedy Jr. stated in an interview today that he is “not scared of a germ” because of his past history of snorting cocaine off of toilet seats. He said this while virtually-extinct viruses continue to pop up all over the country. While misinformed parents refuse vaccines for their kids. While funding for cancer research gets reallocated to billionaires. But sure bro, I’m sure your natural immunity peaked from Colombian marching powder and stranger’s fecal matter.
Supplement 7/25/2025 Making Health Care Complicated: Reckless Firings & Vaccine Removals
RFK Jr. Moves to Dismantle Preventive Care Mainstay
Health Secretary Robert F. Kennedy Jr. is reportedly planning to oust all 16 members of the U.S. Preventive Services Task Force (USPSTF), calling the group too “woke” (Reuters, 2025; The Guardian, 2025). The USPSTF provides independent, evidence-based guidance—covering cancer screenings, HIV prevention, and more—that insurers must cover without cost. The American Medical Association responded with deep concern, urging that the task force’s expert, nonpartisan structure remain intact (CBS News, 2025; AMA, 2025).
Without the USPSTF, preventive care guidance may become medically inconsistent—or worse, politicized—potentially undermining insurance coverage and patient access to lifesaving services.
Supplement 3/16/2026 Finally a Little Pushback: Boston Judge Rules “No”
On March 16, 2026, a federal judge in Boston issued a preliminary injunction effectively halting the Department of Health and Human Services (HHS) from reducing the number of nationally recommended childhood vaccinations. The ruling, led by U.S. District Judge Brian E. Murphy, determined that HHS Secretary Robert F. Kennedy Jr. likely violated the Administrative Procedure Act by attempting to “slim down” the immunization schedule from 17 vaccines to 11 without following proper federal protocols (US District Court of MA, 2026). This legal intervention specifically protects broad recommendations for vaccines against influenza, rotavirus, hepatitis A, hepatitis B, and certain forms of meningitis, which the administration sought to remove in January. Furthermore, the court froze the appointments of a newly formed vaccine advisory panel, citing concerns that the removal of the original 17 members of the Advisory Committee on Immunization Practices (ACIP) lacked the scientific and procedural balance required by law (American Academy of Pediatrics, 2026). As a result of this injunction, the standing medical guidelines for pediatric care remain unchanged while the litigation proceeds, ensuring that existing public health protections for children and pregnant women stay in place (Ground News, 2026).
Supplement 3/24/2026 Urgent Trend: Rising Refusals of Newborn Vitamin K Shots
A concerning new study shows that parents in the United States are increasingly opting out of routine preventative care for their newborns. While most public focus remains on childhood vaccines, this study, based on a broad analysis of health records, highlights a sharp rise in refusals for the standard Vitamin K injection administered at birth (Bia et al., 2025).
Refusal rates for Vitamin K have steadily increased, growing from 2.9% in 2017 to 5.2% in 2024. Health experts cite growing mistrust in medical systems as a primary reason for this change (McDermott, 2026). The refusal trend seems clustered in specific pockets of the country; for example, pediatrician Dr. Tom Patterson in Idaho noted in an interview with the Associated Press that on some shifts, half of new mothers at his hospital declined the shot (McDermott, 2026).
This trend is alarming to the pediatric community because of the potential health consequences. The Vitamin K shot has been a routine part of newborn care since 1961. It is essential because infants are born with very low levels of Vitamin K, a critical component for blood clotting. Without it, babies are at high risk for a rare but devastating condition known as Vitamin K Deficiency Bleeding (VKDB), which can lead to brain bleeds, permanent brain damage, or death. Infants who skip the injection are estimated to have an 81-fold higher risk of developing VKDB (CDC, n.d.).
The research also found a correlation between different types of care refusals. Parents who decline the Vitamin K injection were significantly more likely to also refuse other routine newborn preventative treatments, such as the initial Hepatitis B vaccine and antibiotic eye ointment designed to prevent blinding infections (Bia et al., 2025). While the Centers for Disease Control and Prevention (CDC) modified recommendations for some items, such as the Hepatitis B vaccine, to “shared clinical decision-making,” the medical consensus remains that Vitamin K prophylaxis is essential for every newborn to prevent serious, life-threatening injury.
Supplement 8/4/2025 Health Data Program Raises Concerns
The federal government’s new health tracking program will aggregate private medical data from more than 60 major technology and healthcare companies, including Google, Apple, Amazon, CVS, and UnitedHealthcare, along with opt-in Medicaid and Medicare records (NHPR, 2025). While officials frame the system as a way to improve access and monitor wellness, privacy advocates warn that centralized health data could be weaponized against people with disabilities to justify benefit cuts, limit services, or reinforce harmful stereotypes (The Guardian, 2025). The program’s push to subsidize wearable health technology raises additional concerns, as many people cannot afford or physically use these devices, leading to biased data that underrepresents disabled and low-income populations and skews research and policy outcomes (Stat News, 2025). In light of the administration’s track record on exclusionary policy, advocates are demanding transparency, strict limits on data use, and meaningful community oversight before the program expands.
Supplement 8/11/2025 New Health & Science Policy Updates
1. Trump’s New Executive Order: Federal Grants Under Political Oversight
President Trump signed a sweeping executive order shifting research-grant approvals from peer-reviewed scientific agencies like NIH and NSF into direct executive-branch control. This bypasses scientific experts and inserts a layer of ideological vetting, especially threatening studies focused on disability, race, gender, class disparities, or other structural inequities. Critics warn this risks censoring vital research into marginalized communities in favor of political priorities (Washington Post, 2025).
2. RFK Jr. Cancels $500 Million in mRNA Vaccine Funding
Health and Human Services Secretary Robert F. Kennedy Jr. revoked $500 million in mRNA research funding, cutting 22 programs. These projects included work on COVID-19, flu, bird flu, RSV, Ebola, and other threats. Experts caution that these cuts undermine pandemic preparedness and stall advancements in a transformative vaccine technology (Washington Post, 2025).
3. Violence, Misinformation & the Fallout at CDC
Shortly after Kennedy’s anti-mRNA rhetoric escalated, violence followed: a CDC staff shooting linked directly to anti-vaccine conspiracy thinking. Over 750 current and former public health workers have formally accused Kennedy of fueling hatred and violence against health workers through misinformation and the dismantling of expert advisory structures (The Guardian, 2025).
This Directly Impacts:
- Worker Safety & Trust: The spread of vaccine disinformation has tangible consequences, including threats and violence toward health workers.
- Science vs. Ideology: Replacing expert peer review with political oversight undermines the independence of federally funded research.
- Public Health Risk: mRNA technology, hailed for rapid vaccine design, is being sidelined at a time of global health vulnerability. Now we get to witness the resurfacing of viruses like Measles and Whooping Cough for literally no reason. Sweet.
Supplement 12/18/2025 Fragile Egos Cost Lives
The American Academy of Pediatrics recently lost millions of dollars in federal health funding after publicly challenging policies advanced by HHS Secretary Robert F. Kennedy Jr. The terminated grants supported core child-health programs, including newborn hearing screening, safe infant sleep initiatives, adolescent and rural health services, and prevention efforts for fetal alcohol spectrum disorders. These were not abstract research projects; they were programs that directly reached families, clinics, and communities across the country (Reuters, 2025; The Washington Post, 2025).
HHS officials claim the cuts reflect a shift in departmental priorities, citing objections to so-called “identity-based language” used by the AAP. But the timing is impossible to ignore. The AAP has been one of the most consistent medical voices pushing back against Kennedy’s public-health agenda, particularly his history of undermining vaccine science. When evidence-based pediatric care is defunded immediately after public criticism, it stops looking like policy and starts looking like retaliation (The Guardian, 2025).
Children do not get to opt out of political power struggles. When leadership decisions are driven by personal grievance and ideological fixation rather than science, the consequences land on infants, children, and families who rely on these systems to survive and thrive. This is what happens when ego outweighs evidence: essential safeguards disappear, trust erodes, and the most vulnerable pay the price.
Supplement 2/5/2026 More Dangerous and Outlandish Claims
On February 5, 2026, Robert F. Kennedy Jr. spoke at the Tennessee State Capitol as part of a national tour to promote his “Make America Healthy Again” initiative. During his remarks, he asserted that a ketogenic diet could “cure” schizophrenia and “erase” or “lose” a bipolar disorder diagnosis (Benen, 2026).
Kennedy specifically cited the work of Dr. Christopher Palmer, a Harvard Medical School psychiatrist. He claimed Palmer had “cured schizophrenia using keto diets,” referencing two case studies from 2019 (Lerer, 2026). While Dr. Palmer has acknowledged that a ketogenic diet can lead to significant symptom remission, he has publicly corrected Kennedy’s terminology. Palmer clarifies that he has never used the word “cure” in his research and stresses that these dietary interventions should never replace medical supervision or standard psychiatric medications (Associated Press, 2026).
Kennedy also mentioned that new research was forthcoming that would show patients losing their bipolar diagnoses through diet. Medical experts from the American Psychiatric Association have pushed back on these claims, noting that current evidence is based on very small, preliminary pilot studies. They warn that suggesting diet is a standalone cure could lead patients to dangerously abandon their prescribed treatments (Harris Green, 2026).
It turns out the real danger to public health is actually RFK Jr.
Supplement 2/26/2025 Weaponizing Medicare & Medicaid Services: More Coercive Federalism
There truly is no “low” for this administration. They continue to punch down at every opportunity, this time targeting Durable Medical Equipment (DME)—the stuff that myself and millions of others need to survive, while also using Medicare and Medicaid funding as a bargaining chip to force compliance in cities that they are at odds with, currently targeting Minneapolis, Minnesota.
Targeting DME
The Centers for Medicare & Medicaid Services, under Administrator Mehmet Oz (yep… that Dr. Oz), has announced a six-month nationwide moratorium on new Medicare enrollments and ownership changes for Durable Medical Equipment suppliers as part of a fraud investigation effort reportedly focused in part on activity in Florida. Let me get this straight, it is easier to shut down all future DME suppliers rather than investigate individual cases of fraud? While existing suppliers can continue operating, this broad pause on new entrants raises real concerns for disability communities who rely on timely access to essential equipment and devices, because slowing supplier enrollment in an already strained system can tighten access, reduce competition, and create bottlenecks that ultimately affect people with complex medical needs.
Medicare defines DME as equipment that is medically necessary, prescribed by a doctor, used in the home, and has a life expectancy of at least three years.
Here’s a comprehensive list of what equipment this includes
Mobility Equipment
- Manual wheelchairs (standard and lightweight)
- Power wheelchairs (complex rehab chairs included if criteria met)
- Mobility scooters
- Walkers (standard and rollator)
- Canes
- Crutches
- Patient lifts (Hoyer lifts)
- Transfer boards
- Standing frames (often Medicaid-specific approval)
Hospital Beds & Support Systems
- Manual hospital beds
- Semi-electric hospital beds
- Total electric beds (rarely covered unless justified)
- Pressure-reducing mattresses
- Alternating pressure mattresses
- Air-fluidized beds (for severe wounds)
- Overbed tables
Respiratory Equipment
- Oxygen concentrators (stationary and portable)
- Oxygen tanks and supplies
- CPAP machines
- BiPAP machines
- Ventilators (home use)
- Nebulizers
- Suction pumps
Diabetic & Monitoring Equipment
- Blood glucose monitors
- Continuous glucose monitors (CGMs, with criteria)
- Test strips and lancets
- Insulin pumps (via DME benefit)
- Blood pressure monitors (Medicaid coverage varies)
- Home INR monitors
Bathroom Safety & Toileting Equipment
- Bedside commodes
- Raised toilet seats
- Shower chairs
- Tub transfer benches
- Grab bars (Medicaid more likely than Medicare)
Orthotics & Prosthetics
- Prosthetic limbs
- Back braces
- Knee braces
- Ankle-foot orthoses (AFOs)
- Cervical collars
Power & Complex Rehab Equipment
- Complex rehab power wheelchairs
- Tilt-in-space systems
- Specialty pressure relief cushions
- Positioning systems
- Custom seating
Enteral & Infusion Equipment
- Enteral feeding pumps
- IV infusion pumps
- Feeding tube supplies
- Parenteral nutrition equipment
As advocates (shit—as humans) we should be outraged, watching closely to ensure that this “scorched-Earth” policy does not limit access to medically necessary equipment for those who depend on it to live independently. Because millions of us do.
Here’s a big F-you to Dr. Oz. Despite all of the ineptitudes and under-qualifications of the Trump administration cabinet, Dr. Oz is a licensed medical doctor. “Do no harm” though, right?
Excuse me while I put on my tinfoil cap…
I’m not one to simply buy into conspiracy theories, but all of the actions from this past year have led me to become quite the cynic. I don’t believe anything is innocent or unintentional anymore. The “Make America Healthy Again” (MAHA) movement that was promoted by Trump and Co. is nothing more than theatrics, eugenics, and fascism. I know that these words get thrown around pretty aimlessly, so allow me to explain (but you’d better put on your tinfoil cap as well).
Specific to this supplement (involving claims of DME supplier fraud), Dr. Oz knows (or should know) how stringent the process is to obtain durable medical equipment, as he has likely had to write prescriptions and advocate for his patients to receive necessary equipment and services. Approval for durable medical equipment through private insurance or Medicaid is highly regulated and documentation driven. Patients must provide physician evaluations, detailed medical necessity letters, and often therapy assessments that justify each feature of the equipment. Coverage is limited to strict medical necessity criteria focused on in home functional needs, not convenience or community access. Prior authorization is required, denials are common, and appeals can involve multiple review levels or hearings. Because complex equipment is costly, insurers scrutinize every component, placing the burden of proof on the patient and clinical team. Medical coding is a completely separate beast as well. In Laymans terms, fraud should be fairly easy to investigate. This should not warrant a nationwide moratorium.
Unless… (got your cap on?) this is actually a guise for the president and his donors to further line their pockets. In my opinion, this decision from the CMS is not about oversight, but about consolidation. By freezing new suppliers under the banner of investigation, the administration could narrow the market and steer contracts toward preferred vendors with political connections. In that view, limiting competition creates leverage, and leverage creates profit. For patients who rely on DME, the fear is that an anti fraud narrative becomes a backdoor way to reward insiders while shrinking access and driving up costs. Florida also seems like a very convenient location for these fraud claims, where a huge population of older individuals implant to retire, and where Republican governor Ron De Santis actively spit shines Trump’s boot with his entire mouth.
But what do I know? I’m just some bottom-feeding disabled guy.
Using Healthcare as Blackmail
Vice President JD Vance, alongside leadership from the Centers for Medicare & Medicaid Services and the U.S. Department of Health and Human Services, announced a temporary pause of roughly $259 million in federal Medicaid funds to Minnesota, citing alleged fraud concerns and demanding corrective action from the state. The administration framed the move as a crackdown on waste, but what does it actually mean if the government can threaten already allocated funds to force compliance from states and cities that they disagree with?
Medicaid is not abstract “spending.” It funds home care, personal care attendants, durable medical equipment (see above supplement), mental health services, and long term supports that disabled Minnesotans rely on to survive. When federal officials threaten to withhold Medicaid dollars, they are not squeezing bureaucrats. They are destabilizing healthcare for low income families, seniors, and people with disabilities. Fraud prevention is important, but again, this “scorched-Earth” policy is dangerous posturing. Accountability matters, but it needs to be proportionate. Using the most vulnerable population as pawns to force a state government to act is abhorrent.
Do you want to know who uses healthcare as a weapon?
I’ll give you a hint: it isn’t the good guys.
References
American Academy of Pediatrics. (2026, March 18). AAP statement on federal court ruling regarding ACIP and childhood immunization schedules. https://www.aap.org/en/news-room
American College of Obstetricians and Gynecologists. (2025, September 23). Science is clear: there is no link between acetaminophen use during pregnancy and autism in children [Instagram post]. Instagram. https://www.instagram.com/acog_org
American Medical Association. (2025, July 27). AMA deeply concerned by reported USPSTF changes [Press release]. American Medical Association. https://www.ama-assn.org/press-center/press-releases/ama-deeply-concerned-reported-uspstf-changes
Associated Press. (2026, March 19). RFK Jr. makes food sound like a miracle drug. Researchers say he often overstates the science. AP News. https://apnews.com/article/robert-kennedy-diet-food-schizophrenia-bipolar-diabetes-914787992e743f588ef02ed33242536e
Benen, S. (2026, February 6). RFK Jr. peddles another dubious pitch, claims keto diet could cure schizophrenia.MaddowBlog. https://www.ms.now/rachel-maddow-show/maddowblog/rfk-jr-keto-diet-cure-schizophrenia-health-secretar
Bia, M., Harris, B. J., Keren, R., & Handley, S. C. (2025). Trends in refusal of Vitamin K, Hepatitis B vaccine, and antibiotic eye ointment among U.S. newborns, 2017-2024. JAMA Pediatrics. [Advance online publication]. https://doi.org/10.1001/jamapediatrics.2025.2977
Bloomberg Law. (2025, March 24). DNA data of 15 million people up for sale after 23andMe demise. https://news.bloomberglaw.com/bankruptcy-law/23andme-demise-puts-15-million-users-dna-info-on-auction-block
CBS News. (2025, April 22). RFK Jr. launches autism registry using Americans’ private health records. https://www.cbsnews.com/news/rfk-jr-autism-study-medical-records/
CBS News. (2025, July 29). RFK Jr.’s plans for preventive health panel spark “deep concerns” from American Medical Association. CBS News. https://www.cbsnews.com/news/rfk-jr-preventive-health-panel-ama-concerns/
Centers for Disease Control and Prevention. (n.d.). Vitamin K deficiency bleeding. https://www.cdc.gov/breastfeeding/breastfeeding-special-circumstances/diet-and-micronutrients/vitamin-k.html
Davidson, J. (2025, May 8). Autism and Disability Organizations Invite Secretary Robert F. Kennedy Jr. to Join National Roundtable Discussion; Kennedy Declines to Attend – AAPD. AAPD. https://www.aapd.com/autism-roundtable/
Farber S. A. (2008). U.S. scientists’ role in the eugenics movement (1907-1939): a contemporary biologist’s perspective. Zebrafish, 5(4), 243–245. https://doi.org/10.1089/zeb.2008.0576
Florko, N. (2025, April 24). No new autism registry, HHS says, contradicting NIH director Jay Bhattacharya’s claim. STAT News. https://www.statnews.com/2025/04/24/no-new-autism-registry-hhs-says-contradicting-nih-director-jay-bhattacharya-claim/
Friedlander, H. (1995). The origins of Nazi genocide: From euthanasia to the final solution. University of North Carolina Press.
Frye, R. E., Slattery, J., Delhey, L., Furgerson, B., Strickland, T., Tippett, M., Sailey, A., Wynne, R., Rose, S., Melnyk, S., James, S. J., Sequeira, J. M., & Quadros, E. V. (2018). Folinic acid improves verbal communication in children with autism and language impairment: A randomized double-blind placebo-controlled trial. Molecular Psychiatry, 23(2), 247–256. https://pubmed.ncbi.nlm.nih.gov/27752075/
Gorski, D. H. (2007). Mark Geier: The latest “expert” on vaccine “injury.” Pediatrics, 119(6), 1217–1218. https://pmc.ncbi.nlm.nih.gov/articles/PMC1839225/
Ground News. (2026, March 23). Judge blocks US government from slimming down vaccine recommendations. https://ground.news/article/federal-judge-blocks-hhs-vaccine-changes
Harris Green, H. (2026, February 23). No evidence behind RFK Jr’s claim keto diet can cure schizophrenia, experts say. The Guardian. https://www.theguardian.com/us-news/2026/feb/23/rfk-jr-keto-diet-schizophrenia
Hassan, M. (2025, April 25). Senator Hassan calls out HHS Secretary Kennedy for hiring fraudster to relitigate long-disproven theories. https://www.hassan.senate.gov/news/press-releases/senator-hassan-calls-out-hhs-secretary-kennedy-for-hiring-fraudster-to-relitigate-long-disproven-theories
Hornig, M., Magnusson, C., Dalman, C., & Hultman, C. (2025). Acetaminophen use in pregnancy and risk of autism spectrum disorder: Findings from sibling comparison studies. Journal of the American Medical Association Psychiatry, 82(6), 534-542. https://doi.org/10.1001/jamapsychiatry.2025.0789
Lerer, L. (2026, February 6). Kennedy makes unfounded claim that keto diet can “cure” schizophrenia. The New York Times.
McDermott, J. (2026, March 21). It’s not just vaccines — parents are refusing other routine preventive care for newborns. Associated Press. https://apnews.com/article/parents-refuse-newborn-care-vitamink-82d8c306d15a20c3548b1111516e453d
New Hampshire Public Radio. (2025, May 8). RFK Jr. says autism database will use Medicare and Medicaid info. NHPR. https://www.nhpr.org/2025-05-08/rfk-jr-says-autism-database-will-use-medicare-and-medicaid-info
Reuters. (2025, December 17). U.S. health department cancels millions of dollars in grants to American Academy of Pediatrics. https://www.reuters.com/legal/litigation/us-health-department-cancels-millions-dollars-grants-american-academy-pediatrics-2025-12-17/
Reuters. (2025, July 25). US health secretary Kennedy to oust members of US Preventive Services Task Force, WSJ reports. Reuters. https://www.reuters.com/business/healthcare-pharmaceuticals/us-health-secretary-kennedy-oust-members-us-preventive-task-force-wsj-reports-2025-07-25/
Rossignol, D. A., & Frye, R. E. (2021). Cerebral folate deficiency, folate receptor alpha autoantibodies and leucovorin (folinic acid) treatment in autism spectrum disorders: A systematic review and meta-analysis. Journal of Personalized Medicine, 11(11), 1141. https://pubmed.ncbi.nlm.nih.gov/34834493/
Stat News. (2025, April 24). No new autism registry, HHS says, contradicting NIH director Jay Bhattacharya’s claim. Stat News. https://www.statnews.com/2025/04/24/no-new-autism-registry-hhs-says-contradicting-nih-director-jay-bhattacharya-claim/
Stern, A. M. (2005). Eugenic nation: Faults and frontiers of better breeding in modern America. University of California Press.
Stern, A. M., Novak, N. L., Lira, N., O’Connor, K., Harlow, S., & Kardia, S. (2017). California’s Sterilization Survivors: An Estimate and Call for Redress. American journal of public health, 107(1), 50–54. https://doi.org/10.2105/AJPH.2016.303489
The Guardian. (2025, December 17). American Academy of Pediatrics loses government funding after criticizing RFK Jr. https://www.theguardian.com/us-news/2025/dec/17/american-academy-pediatrics-funding-rfk
The Guardian. (2025, April 22). RFK Jr. proposes autism registry using personal medical data. https://www.theguardian.com/us-news/2025/apr/22/rfk-jr-autism-nih
The Guardian. (2025, July 27). Top medical body concerned over RFK Jr’s reported plans to cut preventive health panel. The Guardian. https://www.theguardian.com/us-news/2025/jul/27/rfk-jr-health-cuts-american-medical-association
The Guardian. (2025, August 20). US health agency workers accuse RFK Jr of fueling violence against them. The Guardian. https://www.theguardian.com/us-news/2025/aug/20/hhs-workers-rfk-jr-violence-cdc
The Washington Post. (2025, December 17). American Academy of Pediatrics loses HHS funding after criticizing RFK Jr. https://www.washingtonpost.com/health/2025/12/17/aap-hhs-funding-rfk/
The Washington Post. (2025, August 6). How RFK Jr.’s mRNA crackdown affects vaccine-making and future pandemics. The Washington Post. https://www.washingtonpost.com/health/2025/08/06/rfk-jr-mrna-vaccine-criticism
U.S. Food and Drug Administration. (2025, September 22). FDA takes action to make a treatment available for autism symptoms. https://www.fda.gov/news-events/press-announcements/fda-takes-action-make-treatment-available-autism-symptoms
U.S. Department of Health and Human Services. (2025, September 22). Autism announcement fact sheet. https://www.hhs.gov/press-room/autism-announcement-fact-sheet.html
U.S. Department of Health and Human Services. (2025, September 22). President Trump, Secretary Kennedy announce bold actions to tackle autism epidemic. HHS. https://www.hhs.gov/press-room/hhs-trump-kennedy-autism-initiatives-leucovorin-tylenol-research-2025.html
U.S. District Court for the District of Massachusetts. (2026). Order granting preliminary injunction: American Academy of Pediatrics v. U.S. Department of Health and Human Services.
Washington Post. (2025, September 22). Trump and RFK Jr. suggest Tylenol poses autism risk, sparking backlash from doctors. https://www.washingtonpost.com/health/2025/09/22/tylenol-pregnancy-autism-risk-rfk-jr/
Department of Education (DOE)
“I love the poorly educated” – Donald Trump (upon winning Nevada Republican caucuses, 2016)
This section of my advocacy blog examines ongoing efforts by lawmakers and President Donald Trump to dismantle or significantly weaken the U.S. Department of Education. It explores how these proposals could reshape federal oversight of education, particularly in relation to civil rights protections and funding programs that support students with disabilities. By breaking down the policy changes, executive actions, and legislative proposals surrounding the Department of Education, this section highlights the potential consequences for accessibility, educational equity, and the enforcement of key disability laws.
History of the ESSA and Potential Impacts from its Loss
The Every Student Succeeds Act (ESSA), signed into law in 2015, replaced the No Child Left Behind Act (NCLB) (an ambitious education program that was an abject failure) and reauthorized the 1965 Elementary and Secondary Education Act (ESEA). ESSA aimed to improve educational equity by providing federal support to low-income and underserved students while granting states more flexibility in setting educational standards. Unlike NCLB, ESSA reduced the emphasis on standardized testing and allowed states to design their own accountability systems, while still maintaining federal oversight to ensure equal opportunities for all students.
The DoE has been around for 45 years and it plays a crucial role in the United States by providing funding to lower-income school districts, which is necessary because most districts rely on local property taxes to fund schools. Many red states plan to redirect public education funds into private school vouchers, leading to de facto segregation in neighborhoods that have historically been redlined and segregated (Ford et al., 2017). Closing the Department of Education would have devastating effects on students, borrowers, and the future workforce. Without it, college access would decline, and student loan defaults would surge. Although the administration argues that states could take over the department’s responsibilities, they lack the capacity to effectively manage federal student loan programs (Gadkaree as cited in Pengelly and Yang, 2025). There will be massive consequences as well to anti-discriminatory legislation.
If the Department of Education is eliminated, the Every Student Succeeds Act (ESSA) would face serious challenges. Federal accountability, which ensures states track and improve student outcomes, could disappear, leading to inconsistent implementation. Vulnerable students, including those with disabilities, might lose critical protections and resources, while funding disparities between wealthier and lower-income school districts would likely grow. Without the Department to manage and enforce ESSA’s provisions, its goals of equity, accountability, and support for underserved students would be severely weakened, jeopardizing years of progress in educational access and fairness.
Supplement 3/20/2025 Dismantling the DOE and Its Impact on Disability Legislation
President Trump announced on 3/20/2025, “We are eliminating the Department of Education once and for all” as he put pen to paper and signed an Executive Order to dismantle the Department of Education. It feels like I’m living in the movie Idiocracy.
All I see here is blatant discrimination. I urge anyone reading this to do research into the federal funding programs, and how they ensure equality.
Eliminating the Department of Education would weaken enforcement of key disability rights laws, including the Individuals with Disabilities Education Act (IDEA), the Americans with Disabilities Act (ADA), and Section 504. Without federal oversight, schools could more easily deny accommodations and discriminate against students with disabilities, especially if they do not have allocated funding for Individualized Education Programs (IEPs). Special education programs may be underfunded if federal IDEA funding is reduced (Peetz, 2025). States could deprioritize services like IEPs, speech therapy, and occupational therapy, harming students and families who rely on them.
Shifting public funds to private school vouchers could worsen segregation and educational inequities. Private schools aren’t always bound by IDEA, leaving students with disabilities at risk of exclusion, especially in underfunded districts. Higher education institutions may also face less ADA enforcement, reducing access to accommodations like accessible housing and assistive technology (Long, 2019). This could make it harder for students with disabilities to succeed. Finally, losing the Department would cut federal data collection on disability access, weakening advocacy efforts and making it harder to address disparities in educational equity.
Supplement 4/22/2025 Federal Loan Collections: Making a Bad System Even Worse
Major Changes in Federal Education Policy: Reassignments and Loan Collections
The Trump administration is dismantling the U.S. Department of Education, shifting special education and school nutrition programs to HHS and moving oversight of the $1.6 trillion federal student loan portfolio to the SBA in the name of efficiency (Spectrum News, 2025; Reuters, 2025). At the same time, collections on defaulted student loans resume May 5, 2025, ending the pandemic pause and putting roughly 5.3 million borrowers back at risk of wage garnishment and tax refund seizure (AP News, 2025; Business Insider, 2025). While borrowers are urged to pursue rehabilitation or income-driven repayment to avoid harm (Investopedia, 2025), federal loan servicing has long been criticized for aggressive collections and poor guidance that disproportionately hit low-income and minority borrowers. As oversight shifts and protections potentially weaken, these moves raise serious concerns about transparency, borrower communication, and legal safeguards during a major and disruptive policy transition.
Supplement 5/23/2025 Judicial Fight for Department of Education Closure
Federal Judge Blocks Closure of the Department of Education
In a major win for public education and disability rights, a Massachusetts federal judge has blocked President Trump’s executive order to shut down the U.S. Department of Education.
Judge Elaine McMahon ruled that the closure of an entire federal department requires an act of Congress, not just an executive decision. Her ruling also ordered the reinstatement of over 4,000 Department of Education employees who were terminated as part of the attempted shutdown.
While this ruling provides temporary relief, it comes at a time when the House is working to significantly cut education funding. The proposed budget would shift enforcement power to the states by turning funds into block grants. These grants would not include federal oversight or accountability.
For students with disabilities, many of whom rely on federal laws such as IDEA and IEP protections, this could result in inconsistent access to services based on where they live.
The administration has already filed an appeal, so the legal battle continues. For now, the Department of Education remains intact, and the fight for accessible and equitable education goes on. I will monitor the best I can.
Supplement 6/27/2025 A Dangerous Shift in Judicial Power
The Supreme Court just handed down a ruling that federal district judges can no longer issue nationwide injunctions. The case stemmed from Trump’s effort to end birthright citizenship, though the Court didn’t actually rule on that issue. Instead, they focused on restricting the ability of lower courts to block policies across the country. I find this change deeply troubling.
Nationwide injunctions have been critical for halting dangerous and unconstitutional policies before they could spread. They stopped Trump’s travel ban, helped preserve DACA, and blocked attacks on asylum seekers and transgender military service (Hawaii v. Trump, 2017; DHS v. Regents, 2020). Now, judges can only protect the specific plaintiffs in a case, leaving everyone else exposed unless they file their own lawsuits.
This shift will slow down justice and create patchwork protections across the country. It also weakens our ability to stop sweeping executive actions. Look at the recent case in Massachusetts where a federal judge ruled the Department of Education could not be dissolved and ordered jobs to be reinstated. If that case happened today, the judge’s ruling might not extend beyond the plaintiffs, leaving other states to fend for themselves.
Justice Ketanji Brown Jackson put it bluntly in her dissent: “It is not difficult to predict how this all ends. Eventually, executive power will become completely uncontainable, and our beloved constitutional Republic will be no more.” She said she dissented “with deep disillusionment,” and I can’t help but agree.
This ruling doesn’t just limit the courts. It gives the executive branch more room to act unchecked. That should concern all of us who believe in civil rights, accountability, and the role of the judiciary as a balance to power.
Supplement 2/18/2026 DOE Wins DEI
In February 2025, the U.S. Department of Education issued a “Dear Colleague” letter warning that certain diversity, equity, and inclusion (DEI) programs in federally funded schools could violate civil rights law and risk loss of federal funding. Education groups challenged the directive in federal court, and later in 2025 a federal judge blocked its enforcement nationwide. In January 2026, just over a full year later, the Department formally dropped its appeal of that ruling, leaving the injunction in place and rendering the anti-DEI guidance unenforceable (Associated Press, 2026; Inside Higher Ed, 2026).
This is a victory for checks and balances. It’s embarrassing that this was even attempted and needed to go to court, but a win’s a win.
Supplement 6/21/2025 Dismantling Educational Accessibility
Two alarming developments are unfolding under the current administration, both with major consequences for disabled communities and public education.
First, the Described and Captioned Media Program (DCMP)—the only free national source of accessible educational videos for deaf and blind students—has lost its federal funding. Previously supported by the Department of Education through the Office of Special Education and Rehabilitative Services (OSERS), DCMP provided videos with captions, ASL interpretation, and audio description for families and educators at no cost. With the switch to block grant funding, states are no longer required to spend that money on accessible media. This puts critical resources at risk and undermines the rights of students with disabilities to a free and appropriate public education.
At the same time, the Department of Education itself is in limbo. Thousands of employees were fired following an executive order aimed at dissolving the department. A federal judge ruled the firings illegal, but the case now sits with the Supreme Court’s shadow docket. If the Court refuses to take the case or delays a decision until fall, those employees remain in uncertainty—and the Department remains unstable. Behind the scenes, the administration continues its efforts to dismantle federal agencies without Congressional oversight.
These actions reveal a broader effort to defund accessibility, disable federal infrastructure, and erode the protections that millions rely on.
Supplement 7/10/2025 Head Start Reclassification Threatens Access
The Department of Health and Human Services (HHS) has reclassified Head Start as a welfare program instead of an educational one, reversing decades of practice that protected children’s right to education under Plyler v. Doe (EdWeek, 2025; Disability Rights Watch, 2025). This change allows HHS to restrict participation based on immigration status or income, potentially excluding undocumented and mixed-status families (The 74 Million, 2025).
Head Start offers early education, family support, and health services for children ages 0–5, including vital therapies for those with disabilities. Reclassifying it as welfare undermines access for marginalized families and could deepen educational inequities. Advocates warn the shift turns a program designed for inclusion into one that enforces exclusion (News from the States, 2025).
Supplement 10/12/2025 The Silent Dismantling of Special Education
As the government shutdown drags on, the Department of Education has quietly gutted the very offices responsible for protecting students with disabilities. According to ABC News and Education Week, nearly all staff in the Office of Special Education and Rehabilitative Services were laid off, leaving the programs that enforce the Individuals with Disabilities Education Act hanging by a thread (Jones, 2025; Schultz, 2025).
Union leaders say almost everyone below senior leadership was terminated, cutting off the people who distribute federal special education funding and oversee state compliance. These layoffs were part of a larger pattern of “restructuring” under the GOP, targeting programs that serve students, low-income families, and those with disabilities. The administration claims this is about fiscal responsibility, but the numbers tell a different story. Over 400 Education Department employees were slashed during the shutdown, a move that undermines decades of civil rights progress (Jones, 2025).
This is a quiet sabotage. By hollowing out the offices that administer disability programs, the GOP is dismantling protections for some of the most vulnerable Americans while the country is distracted and unable to fight back. If these positions remain unfilled, the federal government will lose the capacity to enforce special education law altogether. We need to call this what it is—a systemic erasure.
Supplement 11/20/2025 Another Blow to Healthcare Work: Who Exactly is Deemed Essential?
The Department of Education has released a proposal that restructures how graduate programs are classified for federal borrowing. The plan introduces two borrowing systems. One system offers lower caps for most graduate students. The other offers higher caps for a limited set of “professional degree” programs. The initial list includes medicine, dentistry, law, veterinary medicine, pharmacy, optometry, osteopathic medicine, podiatry, chiropractic medicine, theology, and clinical psychology (U.S. Department of Education, 2024).
Many essential health fields are not on the list. Advanced nursing, nurse practitioner programs, physician assistant studies, physical and occupational therapy, social work, speech language pathology, and counseling are all excluded. Since these programs often cost far more than the proposed lower loan limits, advocates warn that students may be priced out unless they turn to private loans (AACN, 2024).
This restructuring matters because these excluded professions make up the backbone of disability care. Disabled people rely on advanced practice nurses, therapists, social workers, and mental health providers to support daily living, independence, and long term health. If fewer students can afford to enter these fields, shortages will deepen. Waitlists for rehabilitation and home care will grow. Access will decline for those already facing barriers.
Trump has also proposed shifting or shrinking the Department of Education entirely, placing more authority with states. Moving federal responsibilities elsewhere could weaken enforcement of protections like IDEA and Section 504, which safeguard access to education for disabled students.
The bottom line is simple. Reclassifying who counts as a “professional degree” shapes who can afford to become part of the healthcare workforce. Disabled communities depend on those providers. Any policy that closes the door to future nurses, therapists, or social workers is not just a technical change. It affects care, equity, and independence for millions.
References
American Association of Colleges of Nursing. (2024). AACN statement on proposed federal student loan borrowing limits. https://www.aacnnursing.org
Associated Press. (2025, July 10). Head Start will be cut off for immigrants without legal status, Trump administration says. AP News.
Associated Press. (2026, January 22). Trump administration drops appeal of ruling blocking anti-DEI guidance for schools and colleges. AP News. https://apnews.com/article/dei-education-department-lawsuit-appeal-ad150d5ab7747b9c782bc381890e5c8f
AP News. (2025, April 3). Millions of defaulted student loan borrowers to face collections again starting in May. https://apnews.com/article/d0662ba4383951cf14f17e5f20c3cc99
Binkley, C., & Megerian, C. (2025, March 19). Trump to order a plan to shut down the Education Department. AP News. https://apnews.com/article/trump-education-department-shutdown-b1d25a2e1bdcd24cfde8ad8b655b9843
Business Insider. (2025, April 4). Trump is reinstating penalties for student loan borrowers in default. https://www.businessinsider.com/trump-reinstating-penalties-default-student-loan-borrowers-treasury-offset-program-2025-4
Department of Homeland Security v. Regents of the University of California, 140 S. Ct. 1891 (2020).
Disability Rights Watch. (2025, August 7). Dept. of Health and Human Services reclassifies Head Start. Disability-Rights-Watch.com.
Education Week. (2025, October 10). A new wave of federal layoffs will hit the Education Department. https://www.edweek.org
Ford, C., Johnson, S., & Partelow, L. (2017, July 12). The Racist Origins of Private School Vouchers. Center for American Progress. https://www.americanprogress.org/article/racist-origins-private-school-vouchers/
Hawaii v. Trump, 878 F.3d 662 (9th Cir. 2017).
Inside Higher Ed. (2026, January 22). Education Department drops appeal of court order blocking anti-DEI guidance.Inside Higher Ed. https://www.insidehighered.com/news/government/politics-elections/2026/01/22/ed-drops-appeal-order-blocking-anti-dei-guidance
Investopedia. (2025, April 2). Department of Education will soon restart student loan collections and wage garnishments. https://www.investopedia.com/department-of-education-will-soon-restart-student-loan-collections-and-wage-garnishments-11719353
Jamison, P. (2025, May 23). Massachusetts judge blocks Trump order to close Department of Education. Newsweek. https://www.newsweek.com/massachusetts-judge-blocks-trump-order-close-department-education-1898827
Jones, A. (2025, October 11). Special education staff decimated after Trump administration shutdown firings: Sources. ABC News. https://abcnews.go.com/Politics/special-education-staff-decimated-after-trump-administration-shutdown/story?id=126432474.com
Liptak, A. (2024, June 28). Supreme Court curtails nationwide injunctions by federal judges. The New York Times. https://www.nytimes.com/2024/06/28/us/politics/supreme-court-injunctions.html
Long, C. (2019). Parents of Students with Disabilities: Don’t Gut Federal Funding | NEA. Nea.org. https://www.nea.org/nea-today/all-news-articles/parents-students-disabilities-dont-gut-federal-funding
News from the States. (2025, July 27). New restrictions for immigrants could chill Head Start enrollment. NewsFromTheStates.com.
Peetz, C. (2025, February 27). How Schools Make Up for the Feds’ Unfulfilled Special Ed. Funding Commitment. Education Week. https://www.edweek.org/teaching-learning/how-schools-make-up-for-the-feds-unfulfilled-special-ed-funding-commitment/2025/02
Pengelly, M., & Yang, M. (2025, March 20). Dismantling of education department casts US student loans into uncertainty. The Guardian; The Guardian. https://www.theguardian.com/us-news/2025/mar/20/trump-education-department-student-loans
Reuters. (2025, March 21). Trump says Small Business Administration will handle federal student loans. https://www.reuters.com/world/us/trump-says-small-business-administration-will-handle-federal-student-loan-2025-03-21/
Schultz, B. (2025, October 10). A New Wave of Federal Layoffs Will Hit the Education Department. Education Week. https://www.edweek.org/policy-politics/a-new-wave-of-federal-layoffs-will-hit-the-education-department/2025/10.com
Special Education Today. (2025, October 11). U.S. federal special education workforce gutted during shutdown. https://www.specialeducationtoday.com
Spectrum News. (2025, March 21). Trump cuts Education Department: Student loans to SBA, nutrition programs to HHS. https://spectrumlocalnews.com/news/2022/education/2025/03/21/student-loans-sba-nutrition-programs-hhs-department-of-education-cuts
The 74 Million. (2025, July 16). Parents, Head Start providers challenge new rule barring undocumented families. The 74 Million.
U.S. Department of Education. (2005). No Child Left Behind Act of 2001 Annual Report to Congress. https://www.ed.gov/sites/ed/files/about/reports/annual/nclb/nclbrpt2005.pdf
U.S. Department of Education. (2024). Notice of proposed rulemaking on student loan program regulations. https://www.ed.gov
U.S. Department of Education. (2024). Individuals with disabilities education act (IDEA). U.S. Department of Education. https://www.ed.gov/laws-and-policy/individuals-disabilities/idea
There’s an old saying about being born into “interesting times.” I never really grasped how dark that wish was until now.
Universal Human Rights
I was pleasantly surprised to discover that Google Fonts displays a quote from the Preamble of the Universal Declaration of Human Rights for its placeholder text.
It’s a subtle reminder that all humans are born with universal rights, especially at a time where various rights are constantly being challenged all over the world.








































